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My understanding is that membership of the PAG for MEGA was confidential. I do know some quit that group. Again as far as I understand, the remnants of the PAG formed the patient representatives to the CMRC. I don't know whether that's supposed to be confidential or not. In any case the CMRC...

I presume Christine Laennac and Jane Whittaker are the patient representatives. I presume also that Jane Whittaker is the one who liked 'Developing Magic: NLP Training' (albeit in 2011) (see attached). Isn't it time patient representatives were chosen by... patients? Shouldn't they be elected...

Obituary of ME denier in Times today. Nothing on the illness, so maybe not of great interest. https://www.thetimes.co.uk/article/dr-thomas-stuttaford-obituary-jljgnnbrx

Here is a Dropbox link for the file Lucy has created. https://www.dropbox.com/s/jn4fc87v9uuy8ja/Correspondence%20from%20DWP%20about%20ME%20in%202005.pdf?dl=0

Yes, that's how they came. There is a bit missing. I could go back and ask for a better copy, but it doesn't look to me as though there is anythng important missing. Next time I get some stuff, I'll ask them if they would try to do a better job.

Last from DWP. This is the briefing from AfME.

More from DWP.

I have this week received these from the DWP. I've had a quick look through. The two things that strike me are that they confirm Aylward continued on the TSC when he left the DWP, despite his myriad COIs, and a briefing from AfME which is of some interest. I'll get more when I can. I'm not...

I understand that, from right: Kerry McCarthy Stephen Pound Carol Ben Lake NickyMorgan AlexChalk

Ah, Bill has just asked the same question.

I'd like to know who else there was speaking with Carol. Anyone know? From right: Female Stephen Pound Carol Male (sounded Welsh?) Nicky Morgan Male

Great work by all involved. Worth pointing out a couple of things in the government response: First, it doesn't specify 'biomedical', so presumably it includes all research including eg Crawley's work on 'Chronic Fatigue'. Second, the total includes spending by charities etc, so government...

I like this line: Functional cognitive disorder (FCD) describes cognitive dysfunction in the absence of an organic cause But of course they're not saying it's all in our minds. And for double top: absence of evidence...

Interesting that Sharpe, who has been insisting on Twitter that he researches CFS and sees that as different from ME, is interviewed as an expert on ME claiming that GET is effective for ME.

Odd. Dropbox to the rescue. I've uploaded it here. https://www.dropbox.com/s/qv46p29wey1tyof/Chronic%20fatigue%20syndrome%20%26%20occupational%20health.pdf?dl=0

It is rather a long one. No idea why. Try this https://tinyurl.com/y8u3c86w

It's difficult sometimes to pin them down, and I hadn't seen that apple/banana quotation, but essentially yes. The label of CFS also avoids the misleading connotations of 'pseudo-disease' diagnoses such as chronic Epstein-Barr virus infection or ME. From...

Beware of their use of language. Sharpe thinks ME is a pseudo-disease. He believes there is only CFS.

Thanks, both, that's very interesting. Helps explain perhaps why Peter Tatchell has been so willing to support us.

They slip in a reference to 'CFS'. https://www.thetimes.co.uk/article/michael-gelder-obituary-fc0mndtrz 'Under Gelder’s leadership, widely-adopted forms of CBT were developed to treat conditions such as social anxiety, obsessive-compulsive disorder, post-traumatic stress disorder, bulimia...