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I'm guessing young lawyers would like a clear line of argument as to why disease x may or may not be considered, or to previously have been considered, to be psychiatric, even if that view is contested or has been changed. While it is true that neither ME nor CFS was ever listed in the ICD as...

It isn't in DSM 5 ! At least not in the recently published DSM -5 TR - list of codes here: DSM-5 Diagnostic Codes Edit for clarity

I am not a lawyer but: It's important to distinguish between the actions of the Trustees - who in Law are "the Charity" - and the actions of those who work for/operate the Charity. In the Percy case Christ Church Oxford: Dean Martyn Percy cleared for the fifth time, the Trustees were directly...

A complaint to the Charity Commission (CC) has to be tightly matched to both Charity Law and to CC guidance, and excepting where there is gross breach of governance, the CC acts not so much as a regulator but as a support agency for the improvement of the function of a Charity and complaints...

Maybe a breach of BBC editorial guidelines: Editorial Guidelines 1.3 The public interest "The BBC’s Mission [4] specifies that we must ‘act in the public interest’. It is in the public interest to fulfil our mission to produce output to inform, educate and entertain. There is no single...

None of the cut off scores allows separation of cognitive disability from overall physical functioning. It leaves the possibility for someone to be substantially impacted by cognitive deficits while still recording only limited overall reduction in function. Ironically the paper says: "There...

If you want to go down the RCP rabbit hole - there's this: https://rcpwatch.wordpress.com/ - though I'd suggest it's best avoided. These are people who have actively written themselves into their very own conspiracy theory, actors playing actors etc. The only way to deal with them is to stand...

In terms of the 'my sister has it' - this may be true and I'd counsel caution about dissing a possible PwME who's not sought a public role in any of this. There are 3 Fox sisters, two in the public sphere and one whose only public association is with a smallish voluntary sector org operating in...

So the CEO of a Registered Charity has written a book in which she compares, by implication, patient advocacy with the Holocaust ? Still we are only a small group of mass murderers so I guess that makes sense.

The role of EDMs has changed over time and there are calls for EDMs to be reformed or got rid of, certainly there are MPs who refuse to sign any EDM. Few EDMs get more than 30 signatures and those signatures are predominantly from opposition MPs - notably the smaller Parties for who it's a way...

Patterns are seductive, the issue is usually not the finding of a pattern but being able to distinguish real world connectivity from pareidolia.

The priority setting process was underway before I became aware of it and it seemed churlish to criticise after the fact so I haven’t previously commented on this thread, despite many reservations about the direction of the PSP. The following is delayed full “churl”. No doubt seeing an...

One statistical analysis must not rule them all, 2022, Wagenmakers, Sarafoglou, Aczel, Nature, https://www.nature.com/articles/d41586-022-01332-8 "Any single analysis hides an iceberg of uncertainty. Multi-team analysis can reveal it. A typical journal article contains the results of only one...

The 2022 Clinical & Research Guide (The ‘Purple Book’) "We are very pleased to announce that the 2022 edition of the ME Association’s ME/CFS/PVFS Clinical and Research Guide is now available to purchase from the website shop and that a Kindle version will soon be available on Amazon. The...

Available at http://amzn.eu/d/gkyHiz0

The 2022 Clinical & Research Guide (The ‘Purple Book’) "We are very pleased to announce that the 2022 edition of the ME Association’s ME/CFS/PVFS Clinical and Research Guide is now available to purchase from the website shop and that a Kindle version will soon be available on Amazon. The...

Inside Housing Government rejects Grenfell Inquiry recommendations on evacuation of buildings as ‘not proportionate’. News18.05.2211:30 AM GMTby Peter Apps The government has announced it will not implement critical recommendations of the Grenfell Tower Inquiry which called for legal...

"The above article, published online on 5 November2021 in EarlyView section on Wiley Online Library (https://doi.org/10.1002/fsn3.2476), has been retracted by agreement between the authors, the journal’s Editor-in-Chief, Prof. Y. Martin Lo, and Wiley Periodicals, LLC. The retraction has been...

In which way could Psychiatry and Psychology help investigate ME/CFS ? My instinct with this kind of question is to break it down into imperative and pragmatic elements i.e the things one can't avoid and things that might be useful given some freedom of action. For all the reasons we are...

If it was deliberate then the intention may be to neon light "pharmacological" - the subtext being "that's where we need research". Notable numbers inflation - 250k top end estimate for the UK becomes an absolute, and the long accepted 17million globally becomes 30m - surely a nice round 50...