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  1. Woolie

    Energy envelope maintenance among patients with myalgic encephalomyelitis and chronic fatigue syndrome (2017) O'connor et al.

    I'm not sure this is technically allowed, but here is the fulltext (please note that posting this link might be a violation of the forum rules - I've reported myself - so be aware this post might need to be removed quite soon).
  2. Woolie

    Energy envelope maintenance among patients with myalgic encephalomyelitis and chronic fatigue syndrome (2017) O'connor et al.

    @MeSci, thanks for posting. If you're still reading here, would you mind adding the link to the abstract to your opening post? Its helpful to have all that info in an easily accessible place. This one: http://journals.sagepub.com/doi/abs/10.1177/1742395317746470
  3. Woolie

    The Elephant on the Couch: Side-Effects of Psychotherapy (Berk & Parker, 2009)

    How awful, @Arnie Pye! Its amazing just how long we put up with this sort of shit, isn't it? Because we're told they know their stuff, and we're taught to be agreeable and cooperative patients. I saw a psychiatrist when I first got ill in my 20s, mainly because I wanted support and at that...
  4. Woolie

    Is this the mechanism underlying PEM?

    @Subtropical Island, did you see this thread on autoinflammatory diseases? https://www.s4me.info/index.php?threads/auto-inflammatory-diseases-%E2%80%93-what-can-they-tell-us-about-me-cfs.1069 They're not the same as ME, but there may be similar mechanisms involved in both, at least in a subset...
  5. Woolie

    The Elephant on the Couch: Side-Effects of Psychotherapy (Berk & Parker, 2009)

    I've now read to the end of the article. It was really good. Some nice examples of possible harms in psychotherapy: Psychotherapy with troubled and vulnerable psychiatric patients, which involves powerful suggestion based on a unsubstantiated models of the persons' key difficulties. e.g. In...
  6. Woolie

    The Elephant on the Couch: Side-Effects of Psychotherapy (Berk & Parker, 2009)

    But "cognitive/psychological reaction" covers a lot of ground. I'm arguing the reaction in cases like grief is primarily emotional, not cognitive. I don't think its necessary to add in a layer of self-reflection, or negative thought patterns, to understand grief. We humans form deep attachments...
  7. Woolie

    The Elephant on the Couch: Side-Effects of Psychotherapy (Berk & Parker, 2009)

    I agree that thoughts can contribute to certain mild states of distress. Worry about finances. Lack of confidence in your appearance. But even in these examples, I suspect there's still a mood element driving it all beneath the surface. I suspect its a natural human illusion to imagine that our...
  8. Woolie

    The Elephant on the Couch: Side-Effects of Psychotherapy (Berk & Parker, 2009)

    I haven't looked at the main article yet. But if they're saying the biggest problem with CBT is that some patients don't have the smarts to fully engage with it, then that's more the mouse on the couch, not the elephant. The elephant on the couch is the assumption that negative thoughts and...
  9. Woolie

    Spoon theory

    @Sue Klaus, I don't think having spoons is about feeling like you have energy to do things. It simply means that you can do some activities, but you have a pretty fixed limit on what you can do in any one day without payback. So you have to spend your energy wisely. There are periods when I'm...
  10. Woolie

    The Mighty: What "Showing Up" Looks Like for Someone With Chronic Illness

    Great article. Tears were welling in my eyes when I read this one:
  11. Woolie

    Persistent postural-perceptual dizziness (PPPD): a common, characteristic and treatable cause of chronic dizziness (2017) Popkirov, Staab, Stone

    PS @Forbin's point about Mal de Debarquement syndrome is a really good one. Its reasonably common, poorly understood and probably hugely underdiagnosed.
  12. Woolie

    Persistent postural-perceptual dizziness (PPPD): a common, characteristic and treatable cause of chronic dizziness (2017) Popkirov, Staab, Stone

    Argh, so annoying. I've heard of phobic postural vertigo before, I was asked to get involved in a study. Thought it was a crock then, but I now wish I had actually got involved, if for nothing else than to help save these poor patients from this psycho-BS. Look at this...
  13. Woolie

    A randomised controlled trial of the monoaminergic stabiliser (-)-OSU6162 in treatment of ME/CFS (2017) Nilsson et al.

    I agree completely, @Subtropical Island. The collection of problems is real, but something about giving that name implies that its a single entity, with one cause. Diarrhoea is a good analogy. You wouldn't have a comorbid diagnosis of ME and diarrhoea, would you? The diarrhoea would be...
  14. Woolie

    A randomised controlled trial of the monoaminergic stabiliser (-)-OSU6162 in treatment of ME/CFS (2017) Nilsson et al.

    They used the BDI. But they didn't define their subgroup on this basis. They define it according to whether the person was on antidepressants.
  15. Woolie

    A randomised controlled trial of the monoaminergic stabiliser (-)-OSU6162 in treatment of ME/CFS (2017) Nilsson et al.

    I wasn't trying to say that the phenomenon - intense sadness/numbness, despair, loss of joy/pleasure - isn't real. I just think the word "depression" encourages us to think about it in the wrong way. What @Scarecrow experienced is certainly real and awful. But I also got a diagnosis of...
  16. Woolie

    Selling Bad Therapy to Trauma Victims

    We don't really know if they were bad at their job though, do we? The only thing we know for sure is the the writer thinks the dose of therapy give was insufficient. He mentions that 75% of patients feel better after 40 sessions. But that must take about a year. Surely, by then, a lot of...
  17. Woolie

    A randomised controlled trial of the monoaminergic stabiliser (-)-OSU6162 in treatment of ME/CFS (2017) Nilsson et al.

    I had a look at the paper, and it's definitely a null result. It appears they did some post hoc analyses. These found that the subset of patients on antidepressants did show an effect of treatment. But even that was not very convincing because the treatment effect was only evident at 1 and 2...
  18. Woolie

    Article: Traumatic Brain Injury Causes Intestinal Damage

    Its a mouse study. :( Sad face for: 1) the fate of the mice who experienced this barbarism; and 2) the lack of caution applied when extending this finding to human TBI.
  19. Woolie

    Selling Bad Therapy to Trauma Victims

    I read the article, and was pretty taken aback by the clear agenda shining through - which is that we just "know" therapy works, we don't care what RCTs show. RCTs fail to demonstrate its "true" effectiveness, because they don't provide enough sessions or the therapists they engage are just not...
  20. Woolie

    Sickness behaviour – useful concept or psycho-humbug?

    Seeing the term "sickness behavior" now makes me very suspicious. It suggests the person might have a particular view about what MECFS is, and one I'm not in agreement with. It also provides a neat segue into depression, which is the other common condition often said to resemble "sickness...
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