Pacing with a heart rate monitor to minimize post-exertional malaise (PEM) in ME/CFS and long COVID
https://workwellfoundation.org/pacing-with-a-heart-rate-monitor-to-minimize-post-exertional-malaise-pem-in-me-cfs-and-long-covid/
News in Brief post for w/c 13th May.
Facebook: https://www.facebook.com/sci4me/posts/pfbid02UuXQ2eZBucmGCVm5Rg3qPYxxyzAnEAJfRRfzyQZSMz8h4ZmTYB48PxT2nVRAHT3vl
Mastodon: https://med-mastodon.com/@s4me/112466941384956150
Presumably they would have been vetted in order that they wouldn't indulge in "hysterical projection, catastrophising, conspiracy theories, overt hostility and insults", or constructive criticism as most people call it.
‘Personalising stuff that doesn’t matter’: the trouble with the Zoe nutrition app
"Like other companies working in this space, Zoe has all the hallmarks of serious science. Its US equivalent Levels counts among its advisers many respected scientists, including Robert Lustig, famous for raising...
Abstract
Objective
The somatic symptom disorder (SSD) is characterized by one or more distressing or disabling somatic symptoms accompanied by an excessive amount of time, energy and emotion related to the symptoms. These manifestations of SSD have been linked to alterations in perception and...
Abstract
The contemporary neuroscience understanding of the brain as an active inference organ supports that our conscious experiences, including sensorimotor perceptions, depend on the integration of probabilistic predictions with incoming sensory input across hierarchically organized levels...
Full title: Associations between brain morphology, inflammatory markers and symptoms of fatigue, depression or anxiety in active and remitted Crohn’s disease
Abstract
Background
Fatigue and psychosocial impairments are highly prevalent in IBD, especially during active disease. Disturbed...
"Chronic fatigue syndrome (CFS)
In contrast to the previously discussed syndromes, only a few studies address a possible link between indoor dampness/mold exposure and CFS [24, 214, 662].
Here, too, is assumed that CFS etiologically has multifactorial genesis with biological, social and...
Abstract
Background
This study investigates the impact of fluctuating lipid levels on endothelial dysfunction.
Methods
Human aortic and umbilical vein endothelial cells were cultured under varying palmitic acid (PA) concentrations: 0, 50, and 100 μM, and in a variability group alternating...
From the DecodeME FAQ, https://www.decodeme.org.uk/faqs/are-you-looking-for-a-family-genetic-link/
"There is evidence of a genetic link in ME/CFS and people with close family members who all have the disease. We aren’t looking into specific family groups in this study, although our analysis may...
From the transcript of the most recent DecodeME webinar, https://www.decodeme.org.uk/webinar-recording-and-transcript-march-2024/
"we are collaborating with Hanna Ollila and Anniina Tervi from FinnGen, in Finland, who already are analysing ME data from electronic health records from different...
"The proposed study will be a three-arm randomized clinical trial (RCT) of PCC patients diagnosed with ME/CFS according to WHO working group criteria1"
Reference given is to WHO: A clinical case definition of post COVID-19 condition by a Delphi consensus
"The sample size was calculated using...
Full title: Comparing effectiveness of physiotherapy versus drug management on fatigue, physical functioning, and episodic disability for myalgic encephalomyelitis in post-COVID-19 condition: a study protocol of randomized control trial
Abstract
Background
Physiotherapy interventions...
‘It’s destroyed us’: Parents of children with long Covid accused of making it up
"Parents of children with long Covid claim they have been accused of faking or exaggerating their child’s illness, leading to social services’ involvement and, in some instances, court cases and the threat of the...
In order to detect the presence of HHV6, Glasgow Uni needed physical samples to test. A lot of the DNA samples have had material left over after sufficient is taken to sequence the DNA - we were able to ship this leftover material, where participants had given us permission to share with other...
I've created a new thread for this new study, Uni of Glasgow: Inherited chromosomally integrated human herpesvirus 6 (iciHHV-6) in DecodeME [Analysis completion planned for end of Sept 2024]
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