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  1. Andy

    International: Science for ME social media posts

    Always happy to see other people sharing the hard work of the News in brief team.
  2. Andy

    What is the Todd Davenport approach to pacing?

    Not that I am aware of. You could try emailing him at tdavenport@pacific.edu
  3. Andy

    What is the Todd Davenport approach to pacing?

    Pacing with a heart rate monitor to minimize post-exertional malaise (PEM) in ME/CFS and long COVID https://workwellfoundation.org/pacing-with-a-heart-rate-monitor-to-minimize-post-exertional-malaise-pem-in-me-cfs-and-long-covid/
  4. Andy

    International: Science for ME social media posts

    News in Brief post for w/c 13th May. Facebook: https://www.facebook.com/sci4me/posts/pfbid02UuXQ2eZBucmGCVm5Rg3qPYxxyzAnEAJfRRfzyQZSMz8h4ZmTYB48PxT2nVRAHT3vl Mastodon: https://med-mastodon.com/@s4me/112466941384956150
  5. Andy

    UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023

    Presumably they would have been vetted in order that they wouldn't indulge in "hysterical projection, catastrophising, conspiracy theories, overt hostility and insults", or constructive criticism as most people call it.
  6. Andy

    News from PolyBio Research Foundation

    It was probably because people who noticed, or knew about, the event didn't post about it here, which could be for a variety of reasons.
  7. Andy

    Anyone tried Zoe - a nutrition app?

    ‘Personalising stuff that doesn’t matter’: the trouble with the Zoe nutrition app "Like other companies working in this space, Zoe has all the hallmarks of serious science. Its US equivalent Levels counts among its advisers many respected scientists, including Robert Lustig, famous for raising...
  8. Andy

    Changes in interoceptive accuracy related to emotional interference in somatic symptom disorder, 2024, Lee et al

    Abstract Objective The somatic symptom disorder (SSD) is characterized by one or more distressing or disabling somatic symptoms accompanied by an excessive amount of time, energy and emotion related to the symptoms. These manifestations of SSD have been linked to alterations in perception and...
  9. Andy

    Predictive Processing and the Pathophysiology of Functional Neurological Disorder, 2024, Jungilligens and Perez

    Abstract The contemporary neuroscience understanding of the brain as an active inference organ supports that our conscious experiences, including sensorimotor perceptions, depend on the integration of probabilistic predictions with incoming sensory input across hierarchically organized levels...
  10. Andy

    Associations between brain morphology, inflammatory markers and symptoms of fatigue, depression or anxiety in active and remitted [CD], 2024, Thomann+

    Full title: Associations between brain morphology, inflammatory markers and symptoms of fatigue, depression or anxiety in active and remitted Crohn’s disease Abstract Background Fatigue and psychosocial impairments are highly prevalent in IBD, especially during active disease. Disturbed...
  11. Andy

    The German guideline on medical clinical diagnostics for indoor mold exposure: key messages, 2024, Hurraß

    "Chronic fatigue syndrome (CFS) In contrast to the previously discussed syndromes, only a few studies address a possible link between indoor dampness/mold exposure and CFS [24, 214, 662]. Here, too, is assumed that CFS etiologically has multifactorial genesis with biological, social and...
  12. Andy

    Lipid Variability Induces Endothelial Dysfunction by Increasing Inflammation and Oxidative Stress, 2024, Rhee et al

    Abstract Background This study investigates the impact of fluctuating lipid levels on endothelial dysfunction. Methods Human aortic and umbilical vein endothelial cells were cultured under varying palmitic acid (PA) concentrations: 0, 50, and 100 μM, and in a variability group alternating...
  13. Andy

    Project ideas for DecodeME data

    From the DecodeME FAQ, https://www.decodeme.org.uk/faqs/are-you-looking-for-a-family-genetic-link/ "There is evidence of a genetic link in ME/CFS and people with close family members who all have the disease. We aren’t looking into specific family groups in this study, although our analysis may...
  14. Andy

    Project ideas for DecodeME data

    From the transcript of the most recent DecodeME webinar, https://www.decodeme.org.uk/webinar-recording-and-transcript-march-2024/ "we are collaborating with Hanna Ollila and Anniina Tervi from FinnGen, in Finland, who already are analysing ME data from electronic health records from different...
  15. Andy

    Protocol Comparing effectiveness of physiotherapy vs drug management on fatigue, physical functioning, and episodic disability for [ME] in [PCC]... 2024 Sarker

    "The proposed study will be a three-arm randomized clinical trial (RCT) of PCC patients diagnosed with ME/CFS according to WHO working group criteria1" Reference given is to WHO: A clinical case definition of post COVID-19 condition by a Delphi consensus "The sample size was calculated using...
  16. Andy

    Protocol Comparing effectiveness of physiotherapy vs drug management on fatigue, physical functioning, and episodic disability for [ME] in [PCC]... 2024 Sarker

    Full title: Comparing effectiveness of physiotherapy versus drug management on fatigue, physical functioning, and episodic disability for myalgic encephalomyelitis in post-COVID-19 condition: a study protocol of randomized control trial Abstract Background Physiotherapy interventions...
  17. Andy

    General news about Fabricated and Induced Illness syndrome (FII)

    ‘It’s destroyed us’: Parents of children with long Covid accused of making it up "Parents of children with long Covid claim they have been accused of faking or exaggerating their child’s illness, leading to social services’ involvement and, in some instances, court cases and the threat of the...
  18. Andy

    Uni of Glasgow: Inherited chromosomally integrated human herpesvirus 6 (iciHHV-6) in DecodeME [Analysis completion planned for end of Sept 2024]

    In order to detect the presence of HHV6, Glasgow Uni needed physical samples to test. A lot of the DNA samples have had material left over after sufficient is taken to sequence the DNA - we were able to ship this leftover material, where participants had given us permission to share with other...
  19. Andy

    United Kingdom: News from BACME - British Association of Clinicians in ME/CFS

    Pre-recording of the DecodeME presentation to be delivered at BACME conference on 16 May 2024
  20. Andy

    Closed UK: DecodeME updates, was recruitment thread.

    I've created a new thread for this new study, Uni of Glasgow: Inherited chromosomally integrated human herpesvirus 6 (iciHHV-6) in DecodeME [Analysis completion planned for end of Sept 2024]
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