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  1. Andy

    Somatic and Posttraumatic Stress Symptoms in Children and Adolescents in France, 2024, Fernandez et al

    Key Points Question Are somatic symptoms associated with traumatic experiences in children and adolescents? Findings In this cross-sectional study of 363 youths aged 7 to 17 years, those with a history of trauma exhibited significantly more frequent and intense somatic symptoms, including...
  2. Andy

    United Kingdom 2024: Online workshops on ME/CFS Research

    I would certainly agree that it is important to be able to measure how high you are after taking any drugs.
  3. Andy

    United Kingdom 2024: Online workshops on ME/CFS Research

    "Chair - Professor Harm van Marwijk, Professor in General Practice at Brighton and Sussex Medical School Speakers Sarah Gorst – COMET Initiative Project Co-ordinator (Core Outcome Measures in Effectiveness Trials). A Core Outcome Set was identified as a research priority in the 2021 NICE...
  4. Andy

    United Kingdom 2024: Online workshops on ME/CFS Research

    "Please join us for this online workshop examining ME/CFS research and underserved groups. There is very little research on ME/CFS and underserved groups. The cumulative lack of validation of ME/CFS as a physical illness has had long-term effects on service provision and research direction and...
  5. Andy

    United Kingdom 2024: Online workshops on ME/CFS Research

    "Please join us for this online workshop aiming to stimulate drug repurposing studies in people with ME/CFS. The speakers and discussions will look at drug repurposing including clinical use and research findings, study design, and potential drugs such as low dose naltrexone (LDN). This is the...
  6. Andy

    United Kingdom 2024: Online workshops on ME/CFS Research

    "Please join us for this online discussion about the Octopus multi-arm, multi-stage treatment trial for multiple sclerosis and lessons for clinical research in ME/CFS particularly for drug repurposing studies. This is the second in a series of online workshops on clinical research in ME/CFS...
  7. Andy

    United Kingdom 2024: Online workshops on ME/CFS Research

    Link to post with a brief description of the workshops and a link to the recordings ************ "Please join us for this online workshop aiming to stimulate clinical trial research in ME/CFS. The speakers and discussions will look at clinical trial design in people with ME/CFS – how to...
  8. Andy

    Opinion: ‘You don’t want to get better’: the outdated treatment of ME/CFS patients is a national scandal - George Monbiot

    This is George's piece from 2003 about the SMC, https://www.theguardian.com/education/2003/dec/09/highereducation.uk2
  9. Andy

    Opinion: ‘You don’t want to get better’: the outdated treatment of ME/CFS patients is a national scandal - George Monbiot

    Trial By Error: Guardian Columnist George Monbiot Discusses His Scathing Critique of the “Biopsychosocial” Approach to ME/CFS and Long Covid "Earlier today I spoke with George Monbiot, a British investigative reporter and political activist, who has been a columnist for The Guardian for almost...
  10. Andy

    Wakefulness-promoting agents for severe fatigue: to use or not to use? 2024 De Wit et al

    Abstract About 20% of adults experience excessive daytime sleepiness or severe fatigue. Causes include somatic conditions, psychiatric disorders, and medication or drug use. Treatment depends on the underlying cause. If sleepiness persists despite optimal treatment of the underlying condition...
  11. Andy

    The Netherlands - €28.5 million ME/CFS research program - ZonMW funding awards announced April 2023

    Interesting. A caveat would be though whether the Lifelines cohort identifies ME/CFS accurately or not, and I believe there are doubts about that.
  12. Andy

    Review Evaluation of Tools to Assess Symptoms and Symptom Severity in Patients With [MUPS]: A Systematic Review... 2024 Baboo et al

    Full title: Evaluation of Tools to Assess Symptoms and Symptom Severity in Patients With Medically Unexplained Physical Symptoms: A Systematic Review and Narrative Synthesis Abstract A substantial portion of patients presenting to healthcare settings exhibit physical symptoms lacking clear...
  13. Andy

    Sensory Processing Difficulties and Occupational Therapy Outcomes for Functional Neurological Disorder 2024 McCombs, Perez et al

    Abstract Background and Objectives Occupational therapy (OT) consensus recommendations and articles outlining a sensory-based OT intervention for functional neurological disorder (FND) have been published. However, limited research has been conducted to examine the efficacy of OT interventions...
  14. Andy

    UK: Guardian: ‘She wants to go to school’: parents of unwell child fear truancy prosecution

    "Chloe Beak lives with chronic, debilitating migraines, which leave her unable to attend school for days at a time. But instead of receiving support from her school, her parents have been fined by the local authority for her truancy. The family’s current fix is to send their daughter in with a...
  15. Andy

    International: Science for ME social media posts

    Published papers thread for w/c 8th April Facebook: https://www.facebook.com/sci4me/posts/pfbid0mnTxwmUUdF1UZ6XyimCz9Q97rbYCYcE2WxZ1MUFK176yfk17XQkM6G1x27bbqhdel Mastodon: https://med-mastodon.com/@s4me/112275061825057564
  16. Andy

    Exploring the interplay between psychotic experiences, functional somatic symptoms and health anxiety in childhood and adolescence... 2024 Rimvall+

    Full title: Exploring the interplay between psychotic experiences, functional somatic symptoms and health anxiety in childhood and adolescence – A longitudinal cohort study Abstract Background Similarities exist between contemporary explanatory models underlying psychosis development...
  17. Andy

    Somatic symptom distress is not related to cardioceptive accuracy 2024 Petzke et al

    Highlights Correctly counting heartbeats (cardioception) is not related to symptom reporting. Cardioceptive tasks and interoception questionnaires are not related. The cardiovascular signal detection task is a useful and valid cardioception task. Cardioception is likely not a mechanism...
  18. Andy

    Review Long COVID: Long-Term Impact of SARS-CoV2 2024 Makhluf et al

    Management of children with long COVID continues to evolve according to protocols that (1) are based on expert opinions, (2) are extrapolated from guidelines in adult medicine, and (3) rely on already established approaches used to manage other chronic pediatric conditions like chronic fatigue...
  19. Andy

    Review Long COVID: Long-Term Impact of SARS-CoV2 2024 Makhluf et al

    2.3. Dysautonomia and Myalgic Encephalomyelitis and Chronic Fatigue Syndrome Dysautonomia and symptoms related to Myalgic Encephalomyelitis and Chronic Fatigue Syndrome (ME/CFS) overlap with the clinical manifestations of LC. Common symptoms and include persistent fatigue, post-exertional...
  20. Andy

    Review Long COVID: Long-Term Impact of SARS-CoV2 2024 Makhluf et al

    Abstract Four years post-pandemic, SARS-CoV-2 continues to affect many lives across the globe. An estimated 65 million people suffer from long COVID, a term used to encapsulate the post-acute sequelae of SARS-CoV-2 infections that affect multiple organ systems. Known symptoms include chronic...
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