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  1. Kitty

    The possibility of autoimmunity or auto-reactivity in ME/CFS

    Bafflingly fleeting enlargement, too; my neck glands will swell up until for as little as an hour, before subsiding again. A gift of Christmas mince pies last month reminded me that I can often trigger the swelling simply by eating sweet foods. Am not keeping up with posts very well because my...
  2. Kitty

    George Monbiot on ME/CFS, PACE, BPS and Long Covid

    It may not be written for the paper – he has a column, but he's not a full-time staffer. Though it would be good to get a well-written Guardian piece focusing on this issue for once! If he gets it right, it supports and informs Covid patients and throws a bit more public shade on those who've...
  3. Kitty

    Open Medicine Foundation (OMF)

    It's bound to get sticky at times, when the de facto leader of an organisation has about as deep a personal interest in its mission as it's possible to have. Of course, no-one would criticise Ron Davis for being utterly driven to do the best he can for his son. Any parent would be. But it can...
  4. Kitty

    UK - Resources for help getting food during quarantine and other supermarket related problems

    So far, I haven't had any problems getting slots at Tesco, even though I'm not on the priority list. Fingers crossed! I have a delivery about every fortnight, and try to make sure that I book each one about three weeks ahead. I just add my saved shopping list to the basket to reserve the slot...
  5. Kitty

    How to check if your N95/FFP3 mask is 'kosher'

    Thanks for this, @JemPD. It's also good where possible to buy from reputable suppliers rather than sources such as eBay or Amazon, where it's hard to differentiate between people selling genuine and knockoff products. Just in case people aren't aware, there are medical supplies companies in...
  6. Kitty

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    If it's true that up to 10% of people face a long or very long recovery from Covid-19, the fact that the UK is heading rapidly towards reporting 60,000 new cases per day is terrifying. And that's only people who're symptomatic, or have enough reason to think they've been exposed that they come...
  7. Kitty

    Open Medicine Foundation (OMF)

    Very true. We have to remember that, however prominent Ron and Janet are in their respective fields, the family still struggles to afford care. Whitney hasn't been able to contribute to pensions and build savings during what should have been some of the most productive earning years of his life...
  8. Kitty

    Characterizing Long COVID in an International Cohort: 7 Months of Symptoms and Their Impact, 2020, Hannah Davis et al

    Sort of! I've never known mental exertion cause physical symptoms, but sometimes physical exertion can cause even more profound mental PEM than it does physical PEM.
  9. Kitty

    Pathogens Hijack Host Cell Metabolism: Intracellular Infection as a Driver of Warburg Effect in Cancer & Other [...], 2021, Proal & VanElzakker

    Pathogens Hijack Host Cell Metabolism: Intracellular Infection as a Driver of the Warburg Effect in Cancer and Other Chronic Inflammatory Conditions Amy D. Proal and Michael B. VanElzakker, 2021 This hypothesis piece discusses metabolic shift in a broad range of chronic conditions, but as it...
  10. Kitty

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    ...millions of unconnected people who have nothing to gain, but everything to lose. Never mind. Poor dear's only trying to aggravate people because he knows he's history. Discredited history, at that.
  11. Kitty

    Food Implications in Central Sensitization Syndromes, 2020, Aguilar-Aguilar

    "Current indications show that dietary modifications may vastly improve the patients’ quality of life at a low cost." Stopped reading at that point! :bored:
  12. Kitty

    Nickel allergy?

    So going back to the nickel allergy – I've just been pondering in the shower about what I'd do if I suspected nickel had got inside my washing up gloves and possibly triggered an allergic reaction. I can tolerate surgical tape on my skin for a while, so what I'd do is cut two small pieces of...
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