Search results

When patients inevitably deteriorate post Graded Joke Therapy, Sharpe will argue that the jokes were improperly delivered. Need an august and seasoned performer to appropriately administer said jokes.

Why is BPS the default until better data is available? Shouldn’t these zealots have to provide some evidence base for their multimodal therapies? It seems as if they’re ostensibly arguing that BPS should automatically be the reflex until proven otherwise.

Much of the time I interpret OMF’s musings as an effort to delude themselves, rather than us (not that I disagree with sentiments expressed above). Ron, first and foremost, is a desperate father clamoring to return his son to the realm of the living. Given that reality, there is likely a...

The study remains indefinitely suspended. So I have little to no idea why they’re updating the clinical trials database? Also, apparently a compendious waiting list exists despite the undertaking only attracting a smattering of participants over the last five years. It all makes perfect sense...

I’m less buoyant than others regarding this measured CDC step. If the independent reviewer’s findings still find footing on the agency’s disease specific webpage, this may implicitly appear like a government endorsement of whatever drivel they cooked up. I can foresee some supercilious...

Blunted curiosity led me to contact the recruitment director and inquire further. Nikita proved quite affable and hospitable to the inquiry. I pressed her regarding the study’s philosophical approach to ME and voiced concern regarding the discredited BPS model. She couldn’t divulge the consensus...

The fun thing about “adverse life events” is that you could subjectively deem literally anything an adverse event, thus justifying the causal model. Undercooked salmon three weeks prior to onset? Favorite football side’s goalkeeper spills one into his own net? Shampoo permeates the eyes...

Could anyone illuminate why Al Carson is treated as some luminary in the post-infectious disease space? What are his qualifications to opine on these matters? And perhaps more importantly, why is anyone listening?

The brazenness is astounding, particularly the invocation of a need for further GET/CBT trials. It screams: we can do what we want, when we want, and with total impunity. It almost reads like something the Sharpe parody Twitter would compose as a gag.

https://www.google.com/amp/s/nymag.com/intelligencer/amp/2021/11/havana-syndrome-the-misconception-about-a-mystery-illness.html Adam Gaffney’s penchant for dismissing the unknown and engaging in nauseating contrarianism has been discussed on this forum previously. However, I staunchly believe...

Pardon any ignorance inherent in this reply, but who is Robert Howard? I’m still familiarizing myself with the leading lights in the BPS domain, but this name is wholly unfamiliar to me.

Particularly paradoxical considering Sharpe is now billing himself as a free speech crusader (see Twitter bio). Perhaps that mantra doesn’t extend to any speech critical of PACE, BPS, or anything else he fancies. Much like his apparent commitment to evidenced based medicine.

I wonder who authored those dastardly and scientifically illiterate remarks from the Association of British Neurologists. The emphasis on not all symptoms being psychiatric clearly connote they believe most symptoms are due to psychogenic causes. Moreover, I recall their commentary conceding...

It’s akin to a high school reunion where attendees flaunt their alleged achievements when in reality all they’ve accomplished is the dissemination of an appallingly inept trial. Sharpe performs an impassioned, and hopelessly butchered version of Journey’s “Don’t Stop Believing” as the crowd...

Thought it worthwhile to provide the following information. I contacted this study expressing my willingness to participate. After a relatively cursory screening process, a staffer called to inform me that I was rendered ineligible due to the presence of the following medications in my...

Greetings Fellow ME Crusaders - This is my maiden voyage in the forum, so hopefully this inaugural post proves informative. As the NIH website indicates that the intramural study is again actively recruiting, I contacted the patient coordinator for clarification. She informed me that the study...