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I would say so. Considering the rest of the piece. Hopefully someone here can clear it up for us!

"On the trail of a less inflamed ME debate." Clinical psychogist Grete Lilledalen about ME and CBT/GET. Well worth the read and share! "We must stop attributing illness and the absence of improvement to the patient's personality." "Instead of building the stigma of "treatment resistance" and...

You gave me PEM from laughing! :)

Thank you for that slide @Robert 1973. Super interesting! Good questions!

I could only listen to him a few seconds but this man is amazing! I sincerely hope this trial will work out for us!! Hopeful!

See the picture attached to my first post.

I have not read the study so I can't comment if they didn't use it. But if this is the tweet you were referring to then that tweet is not about the study itself.

It was not in relation to the study!

Well I was referring to @dave30th. I don't want to spoil the picture with mine lol.

Yes, if you need one of mine lemme know! ;)

My thoughts on the coronavirus pandemic. "We are in a crisis! A pandemic! The coronavirus is spreading. The uncertainty of the unknown is probably the most unsettling of the whole situation. Especially for someone with an underlying health condition." "How do you go about being stuck at home...

I have a few friends that have sarcoidosis and PEM. Questionnaires are not very reliable. https://www.sciencedirect.com/science/article/pii/S0889159113001967

Holy crap. "We included 426 ME/CFS patients and 4511 healthy" Is that 4511 a typo? Even 451 would be impressive!

Vrijhoef also published this study: Assessment of the scientific rigour of randomized controlled trials on the effectiveness of cognitive behavioural therapy and graded exercise therapy for patients with myalgic encephalomyelitis/chronic fatigue syndrome: A systematic review...

Sadly they are often considered quacks by many mainstream docs. It's slowly changing though.

68% seems a little high?!?

I started at a quite young age but was rather on the stiff side. I'm more of a pirouette turner and high jumper. The dancers that are flexible fit more the hEDS picture. Actually many of my former colleagues do. It also makes me wonder where to draw the line between hEDS and healthy Über...

Thank you! Great to see a famous psychiatrists expressing his concern like this.

That is a great concern of mine as well I don't think people are enough aware of that. When I was still dancing if I locked up my neck I could be sure that my back would follow and visa versa. The surgery must have a similar effect and on the long term possibly devistating effects.