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Yes cyclo did reduce Ig levels. Please see my post here Post in thread 'Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS): Clinical trials, medical treatment and pathomechanisms, 2024, Rekeland'...

#VerySevereME emergency in México @stefan_arce has asked we share his posts & asks if @JanetDafoe @LBatemanMD @OpenMedF @WorldMEAlliance can share his story & offer some support. We have NO #ME support or recognition in MX.

https://www.sciencedirect.com/science/article/abs/pii/S0273230014002037 Risk assessment of GBL as a substitute for the illicit drug GHB in the Netherlands. A comparison of the risks of GBL versus GHB

IG post about Renate (Dara trial patient) half in Norwegian.

I think you are missing the point. It’s actually better that he is doing these under-evidenced videos. I don’t have any confidence that he would be able to execute a high-level science project. Basically every year since I started on these forums maybe eight years ago he has been talking about...

Cort is correct on pricing—generic oxybate is like $7000/month. There is a controlled release formula that is almost $200,000/month. Crazy. https://www.lumryz.com/

https://www.healthrising.org/blog/2025/08/24/narcolepsy-chronic-fatigue-syndrome-fibromyalgia/ Perrino was 45 years old when something happened that changed his life. While researching a new sleep compound called Xyrem, his doctor, Neil Feldman, asked him to be a human guinea pig. Feldman was...

Guilty as charged.

Maybe this is better for a members only thread? In general, I like the OMF approach because it is a consortium of researchers not just a single researcher/research group. Having said that, Polybio is also a research consortium , but…..well you know.

Here is the full Putrino thread courtesy of @Yann04 https://xcancel.com/PutrinoLab/status/1959882082785636396

Twitter combined with mainstream health journalists who seem to conflate Twitter posts with useful scholarly output, and therefore tend to cite the Twitter people in their articles.

Putrino on Twitter responding to Todd Davenport. Davenport: Today’s unpopular opinion is that we’ve put too many resources toward studies looking into treating viral persistence, even though it seems to follow but does not lead in the pathophysiological process of Long Covid. These are...

This phenomenon is even worse for “Long Covid”. There is whole suite of researchers, largely based in the USA, promoting various theories about viral persistence, spike proteins, etc., for patients who almost certainly have ME/CFS. Umm speaking of the devil….

Is there a limit? A lot of these types of folks who are in over their skis end up trying to be patient allies, etc., but in reality, in the long run they end up doing harm by diverting resources from researchers who are not in over their skis. The researcher from Florida also comes to mind.

@Shiqiru 您好，欢迎光临。您是如何了解到这个论坛的？ Hello, welcome. How did you hear about this forum?

Apparently this is making a big splash on Reddit CFS. Don’t know why the YouTube isn’t linking properly.

Be curious to hear if https://en.wikipedia.org/wiki/Baldomero_Olivera has come up with any leads.

Abilify et al also work presynaptically as well. For example: https://onlinelibrary.wiley.com/doi/full/10.1002/npr2.12180

I agree with @ME/CFS Science Blog that ME/CFS is a “brain signaling disorder” but I believe that it is immunomediated. Why? Most/many ME/CFS patients respond (in some cases dramatically) to the dopamine system stabilizer drugs (Abilify, Rexulti, Vraylar, OSU-6162), indicating that there are...