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Dr. Anna's website states: "Think creatively about how you could raise the funds, some people have used fundraising such as ‘crowdfunding’ in the past. It may not be as impossible as you think!" So recovery is possible if you think positively and payment is possible if you think creatively.

Too bad we can't track ME/CFS accurately using the International Classification of Disease (ICD).

Sad to see the BJGP published this article. I agree that suggesting that patients on the NICE guidelines had an anti-recovery bias is insulting. It seems that the BJGP editors, however, have responded by shutting down the comment section rather than doing anything about the problematic article...

"Had cognitive therapy had a curative effect on most people, we would have had approximately zero ME patients." "But where the immune processes are active, adaptation mechanisms are needed" Not the most nuanced or strongest arguments in my view. The problem with cognitive therapy is no that...

Looks like the team has been expanded, with for example, the Lymeprospect study and COVID-19 studies.

Anyone able to have a look at this? I don't think these figures can be right. Perhaps @sTeamTraen could have a look? @JohnTheJack

Was looking at the results of table 2. The fatigue score was 4.1 points lower in the intervention but the standard deviation beforehand was only 0.14? So that makes for a mean difference of 29 standard deviations! That's incredibly large. I also entered 10.72 and 10.14 in the GRIM test and it...

The strange thing is that ME/CFS patients actually did perform worse than the two control groups on the test. The difference is quite large. So, if ME/CFS patients thought they would perform worse, then they were simply correct? It makes all the speculation in the paper about unhelpful beliefs...

Thanks, good to get an update. I think everyone will understand that it takes a while to analyse such a big dataset. You also already do a lot for ME patients. Sorry to hear you responded badly to the vaccines. Hope you'll keep improving. Best wishes.

Is it me, or do studies like these (Skype-interviews with 13 patients) seem more like a high-school project than actual research by academics?

Most of the studies mentioned in the overview article are small, have not been reproduced and are of no better quality than the usual biomedical research into ME/CFS. For example, the study on pulmonary abnormalities included only 11 Long COVID patients, the one on myelin loss only 9, the one...

Thanks, I've already included the big Norwegian study. The results are indeed interesting. Does the big European survey also includes responses on mild/moderate/severe ME/CFS? Any idea on when the results might be published? Many thanks in advance,

Anyone knows where this figures comes from? This 2002 report from the Chief Medical Officer in the UK states: Estimates suggest that up to 25% of people with CFS/ME are so seriously affected that they are unable to perform most basic personal tasks and are confined to bed or spend the...

Betteridge's law of headlines is an adage that states: "Any headline that ends in a question mark can be answered by the word no." It is named after Ian Betteridge, a British technology journalist who wrote about it in 2009, although the principle is much older. It is based on the assumption...

Blog post that dissects the arguments of Flottorp et al. https://mecfsskeptic.com/a-rebuttal-of-flottorp-et-al-new-nice-guideline-on-chronic-fatigue-syndrome-more-ideology-than-science/

Perhaps they are pursuing it outside of Cochrane.

I noticed that at the end of the article it says (my bolding): KGB reports that he is one of the authors of the Cochrane review about CFS/ME and exercise therapy and he is currently involved in the work with a review based on individual patient data that is about CFS/ME and exercise therapy...

Does anyone know any patient surveys that have responses for the categories: mild/moderate/severe?

Thanks!

Hi, I'm looking for papers that separated ME/CFS patients into different grades of severity with some epidemiological data on each of the groups. For example, if you were to divide the entire ME/CFS population into mild, moderate, severe and very severe, what percentage would be given to each...