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There is a pattern of not putting much weight on dietary factors in these studies, here it is not mentioned at all (but they have a reference to dietary fibre can protect agains the flu.... in mice).

This sounds very much like using objective outcomes together with subjecti- sorry, "patient reported" ourcomes if trials can't be blinded that a certain someone mentioned in his expert testimony. But in any case, that won't change that a lot of the studies in the evidence base has no such...

wyller is giving a talk on diagnostic criteria, if it hasn't been held already. I need to look into that, he has previously argued that the criteria don't matter (but also used the canadian criteria as a quality mark in the proposed LP study that got cancelled).

In Norway the competence center has said that NICE guidelines might not influence ours (I think in responce to updating our own guidelines in light of NICE guidelines, perhaps even after the draft was out. Do you remember @Kalliope ?)

If it hasn't been mentioned yet, the Royal Colleges of GP's in their consultation refer to PP's own review of LP :O

The paper has no figures, the results are ten lines split into two paragraphs. What I don't like is that the biomarker, based on what I read in the background, has been studied previously in healthy individuals as a general marker of physical fatigue. What if the pwME is not "fatigued" when...

The thread "OMF - Sleep Disturbances in ME/CFS" have been merged with this one.

Posts on the prevalence of ME has been moved to the thread ME Epidemiology - prevalence, peak ages of onset and gender ratio.

Two threads on ME epidemiology, prevalence and incidence rates have been merged, and posts on prevalence from the thread BBC: Isle of man government pledge to support ME patients by 2020 have also been moved here.

I lost my period for nearly two years, complete lack of interest from doctors. Or, my hormones were tested, I was told to eat more, exercise less and to not be a type A person.

For me it was the "you are not left to fend for yourself" line. That is a whole different world than the one I'm living in.

Referring to the national competence center's guideline while talking about the importance of children being able to go to school... the ME Association could have received some credit for their work in this area (including providing resources and training material for schools). And the...

Except that many diseases have multiple problematic genes, and not all genes can be silenced as the protein they code for have other functions in the body not related to the disease. Still exciting though.

Yes, that was the one :)

There was a news article on football players not functioning at the same level 6 months post covid, but I can't find it again.

Here's to hoping that the sentence about prioritizing ME research in the new state budget leads to something.

We also have a wool topper that we're both very happy with, on top of a natural latex mattress. When we bought it the supplier had two kinds, one with treated wool with supposedly no wool smell, so if smell is an issue maybe other suppliers have the same type of product? Ours was bought from a...

A post on the evidence base on collagen degradation in ME/CFS has been moved to its own thread "What is the evidence for collagen degradation in ME/CFS?".

For context, there is a large debate in Norway on how our GP system should be, as the current system is somewhat falling apart (GPs quitting, few med students wants to become GPs, many people are without a GP in their area).

Oi! I'll have you know nutrition science really does see this issue, and it would totally be resolved if it wasn't so much easier to validate results using a method with the same weaknesses and biases as the first method! It's driving me nuts. Why do we continue to collect all the data...