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From the #MEAction website: #MEAction is thrilled to announce we will be hosting a virtual #MEAction X The Long COVID Survival Guide Panel featuring editor Fiona Lowenstein and contributors Rachel Robles, Chimére L. Smith, and Terri L. Wilder from the recently released book on Tuesday, Jan 17th...

WebMD: Researchers Hunt Biomarkers – Potential Keys to Long COVID https://www.webmd.com/covid/news/20230106/researchers-hunt-long-covid-biomarkers Brief mention of ME/CFS:

@Kalliope, let me add my thanks, too! I appreciate your hard work and I'm happy to see the number increasing. Bookmarking for future reference.

No mention of ME or ME/CFS anywhere, at least, none that I found (please correct me if I missed one). I get why they didn't mention it in the first couple of introductory videos. But why is ME not even mentioned in that third video? (the one called "What are Common Long COVID Symptoms") I...

I also added gliders to the feet of my bar stool. It slides pretty well on our vinyl floor.

Your description sounds like a tall director's chair. EDIT: I just realized you said no back! I misread and thought the "canvas strip for support" meant the back support. And I'm pretty sure I did that because I wouldn't want to sit in a chair without a back support.

Thanks for transcribing the text from the tweets. Twitter was not working for me yesterday afternoon. I just kept getting the loading image (GIF of a circle) but nothing ever loaded. But it's loading for me again. Anyway, I noticed that the text from very first tweet is missing so I thought I'd...

Moved post Long Haul COVID: Like 'Demon Had Hijacked My Nervous System' Says Author https://www.newsweek.com/2022/12/23/long-haul-covid-like-demon-had-hijacked-my-nervous-system-says-author-1766502.html Interview with Ryan Prior in Newsweek magazine.

ME/CFS and Post-Exertional Malaise among Patients with Long COVID by Leonard A. Jason and Joseph A. Dorri Abstract This study sought to ascertain the prevalence of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) among a sample of 465 patients with Long COVID. The participants...

From Medscape: Long COVID: Who's Working to Find Treatments? https://www.medscape.com/viewarticle/984510 Video with transcript.

I boost ("retweet") @Tom Kindlon 's posts on Mastodon so I will add my thanks here, too! I also do my own post of the Science for ME news once a week, usually on Mondays. (I'm often not online on Sunday) And then I pin it to my profile so it shows up first. There's no algorithm on mastodon...

[Meant to post this last week ... better late than never!] The latest post in the #MEAction series looking at different aspects of ME: Facets of ME: Centering ME During the Holidays https://www.meaction.net/2022/12/08/facetsofme-centering-me-during-the-holidays/

Stat News posted this article today: Studies indicate updated Covid boosters effective at reducing need for medical care https://www.statnews.com/2022/12/16/covid-boosters-effective/

This article is from yesterday. A search didn't find it so I don't think anyone else has posted it yet. Washington Post: Long covid can be deadly, CDC study finds Regular link: https://www.washingtonpost.com/health/2022/12/14/long-covid-deaths/ Gift link, no paywall for 14 days...

This graphic from the study is helpful.

Interesting. Mostly beyond my ability to understand but I did notice one thing: The active stand test is better than nothing, but it can miss cases of Neurally Mediated Hypotension (aka, neurocardiogenic syncope, vasodepressor syncope, delayed orthostatic hypotension, or whatever name(s) are...

CDC Maps: From Red to Green Comparison of two of the CDC maps (community transmission vs community levels) that are available on the CDC website and displayed on their social media. FYI, this video is new, and the discussion is timely, even though the CDC made these map changes to show new...

@Andy, with all that's going on with twitter have you considered making a mastodon account? Just curious, please do not interpret my question as a request to do extra work! Very grateful for all the work you do :heart:

Interesting! I haven't read the books so I had no idea that the dementor analogy was flawed.

Groundbreaking research into ME/CFS a pandemic ‘silver lining’ https://healthydebate.ca/2022/12/topic/research-mecfs-pandemic-silver-lining/