Search results

Here's the next event in the "Sunday Conversations" series: "The Broken Mishkan: Performance and Community Conversation with Sara Nesson" Sunday, March 19 4 pm Eastern Time / 1 pm Pacific Time Find the time in your timezone here...

Thank you for the offer, so kind of you! EDIT - Deleted my comments about attaching files. I posted without seeing the message saying the file was too big.

New episode available (Season 2, Episode 8) with guest Cynthia Adinig, a marketing specialist turned Long COVID advocate. https://www.meaction.net/chronically-complex-meaction-podcast/

Here's the #MEAction web page with links to all three Pacing And Management Guides and a brief description of each one: https://www.meaction.net/resource/pacing-and-management-guide/

Here's an interesting article from New York Magazine that looks at some of the misconceptions about AI large language models (LLMs). You Are Not a Parrot And a chatbot is not a human. And a linguist named Emily M. Bender is very worried what will happen when we forget this...

I don't have access, but this correction notice does not inspire confidence:

I think half a liter of ice cream is roughly the size of a pint container. (someone please correct me if I've screwed this up!) That's the small size often sold in stores. The label on most pints have a suggested serving size of 1/2 cup (100 grams) = 4 servings in a pint. But many folks tend...

This sweetener was just mentioned on the forum a day or two ago. So when I saw this article I thought I'd post it here. Fair warning, I have not looked at the study and don't have the ability to analyze it to see how accurate this CNN article is...

#MEAction, in partnership with Patient-Led Research Collaborative, has published a new Clinician’s Pacing Guide. From an email announcement: Link to Clinician's Pacing Guide: https://www.meaction.net/wp-content/uploads/2023/02/Pacing-Guide-Clincians.FINAL2_.pdf Full email message here...

2 posts copied from News from #MEAction. #MEAction, in partnership with Patient-Led Research Collaborative, has published a new Clinician’s Pacing Guide. From an email announcement: Link to Clinician's Pacing Guide...

Long Covid disabled them. Then they met a ‘broken’ Social Security disability process https://www.cnn.com/2023/02/25/business/long-covid-workforce-issues-disability-claims/index.html I didn't have the heart to read it or post any quotes from the article. Seems like over the past 23 years (I...

Merged thread New blog post from "Calling all ME/CFS Allies!" - Solve ME Advocacy Week: Sign Up Today! I discovered this substack blog recently (substack = yet another publishing platform): Calling all ME/CFS Allies! By Encephalogirl Home page: https://encephalogirl.substack.com/ The most...

News article about this study from The Scientist, posted on Feb. 21: Gut Microbiomes Offer Insights into Chronic Fatigue Syndrome Levels of health-promoting gut bacteria are linked with severity of fatigue symptoms, a study finds...

From the Open Medicine Foundation website: OMF & Patient-Led Research Collaborative Pioneering Progress for ME/CFS and Long COVID https://www.omf.ngo/pioneering-progress-for-me-cfs-and-long-covid/ The Patient-Led Research Collaborative website is here - https://patientresearchcovid19.com/

Adding cross-reference links for the threads that discuss the two papers mentioned in the recent NIH Director's Blog: 1...

I had a free article left. I don't want to post the whole thing due to copyright issues but here's an excerpt. "Month eight and still declining." Boy, I remember when 8 months of illness seemed like a long time. Anyway, She goes through her own story listing symptoms and how they change. She...

The NIH Director's Blog talks about the two recent papers on microbiome disruption in ME/CFS: More Clues into ME/CFS Discovered in Gut Microbiome https://directorsblog.nih.gov/2023/02/14/more-clues-into-me-cfs-discovered-in-gut-microbiome/

Note: Due to professional licensing issues, you must be a Massachusetts resident to attend this group. Announcement from The Massachusetts ME/CFS and FM Association: Young Adult Support Group for those with ME CFS, FM, Lyme, Long Covid, and Chronic Illness - Feb. 18, 2023...

New blog entry from Bateman Horne Center, posted Feb. 9: Potential Targets for ME/CFS Clinical Trials https://batemanhornecenter.org/potential-targets-for-me-cfs-clinical-trials/

I went to the eventbrite page and saw a notice that this event has been cancelled. It's also marked as cancelled on this website: https://naminycmetro.org/calendar/long-covid-and-mental-health-a-panel-discussion/