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I wonder if the rest of the EU will follow suit? Too bad it won't matter for the rest of us, any more.

That's good!

What a pile of bollox. Another null result dressed up as proof of whatever they wanted to show in the first place.

Yup. We just withered away and died. Or pushed through, collapsed of exhaustion, and then died. Or were accused of being possessed by devils and were burned to death or abandoned. Or . . . Well, you get the idea!

No one here thinks ME does or should include vaguely defined 'chronic fatigue' patients. The point is, though, that PACE claims to be covering both chronic fatigue and chronic fatigue syndrome patients (and ME patients too, since the authors claim to use the London criteria on a subset) - and...

Mine came up suboptimal on my phone, but again, I don't think the phone was reacting quickly enough. That said, having a mouse cursor hovering over the numbers (so you can be poised to click) seems likely to give too positive a reading too. I wonder which it's intended for?

'Vexatious' is a rather politically charged term in this context. This is the second time in this thread you've accused others of having sinister motives. Might I suggest that you consider such feedback constructively, rather than as an attack on you? Your numbers are certainly very...

More BPS nonsense.

This strikes me as a very odd way of going about things. Why wouldn't you read the other papers? Science isn't based on originality of thought or syntax (which is what creative writing is for*). Reading your contemporaries is pretty much a prerequisite for good science, otherwise, how can you be...

The big one is steps via actimeter. Lots of people where Fitbits now, so it's very easy to track.

There's a huge issue with the outcomes in the scope: they're all subjective. I think you noted that this section is satisfactory, so you may wish to amend that. Including subjective outcomes solely will result in more GET and CBT.

This was what I was sent when I asked them to reconsider my complaint to Yellow Card. Something very fishy is going on. It's like they don't want to log harm.

Interesting than inosine (which is part of inosine pranobex or Imunovir) is being studied as a neuroprotective in PD. Maybe it's that that has helped ME patients, rather than (or in addition to) its immune properties.

What's tricky is the campaigning part. You're not allowed to be political if you're a charity. A lawyer can help you avoid complications when you campaign.

I think Tina displays all the cognitive dissonance of a CFS/ME clinic!

Good to know. And I've seen studies showing that diabetes and metabolic syndrome can cause cognitive problems in children. So could this be tied to the metabolomics stuff in some cases, and perhaps to nerve issues in others? Those dorsal root ganglion problems some patients have could perhaps...

Brainstem issues, yet again.

So even when 10/19 people deteriorate, they claim it's a positive result!

Some infections don't have DNA though, right? Is the same true of RNA, in that case?

Absolutely. I think it's actually dangerous to publish unproven 'cures' of any kind, and a charity should seriously rethink such a strategy if it still goes on. Especially as their readers may be desperate to try anything.