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I think to many patients, the less politically aware and newly ill, the Colin Barton piece will be of far more interest. Unfortunately, many patients won't bother with the science papers. Until they learn better, they will believe in the system. So this is exactly the type of thing that will...

Pssst! @TiredSam! - we at @Mij's placebo pharmacy carry an excellent range of capsules. I am sure we could do a good deal for you to pass on to your valued customers.

No one doubts that Charles Shepherd has a heavy workload or that he has done a great deal of good over the years. However, I worry that (apart from Russell Fleming) he appears to be all alone at the MEA. If they have a person putting this stuff on their Facebook, surely this person is also...

Apparently, I am Commander? See does this mean: 1. You usually find it difficult to relax when talking in front of a largish group of people? or 2. You usually find it difficult to relax when talking in front of most people? But you might talking to one or two. and if 1. Is it a bad...

Oh b*gger! I deviously thought I'd let you lot do all the hard work and see what you found. Now, I want to do the test! Not so amusingly, I spent 4 hours doing psychometric testing as part of a job application ( in addition to two interviews and giving a presentation). I loved my job, but...

AfME tactic right there! Recommend what they think is popular, rather than what's actually effective. Never mind people spend money they don't have, may make themselves worse..... :banghead::banghead::banghead:

Wow! Can any other facebookers check that? Not to doubt you, Andy. Just to double check it's not visible to other users. That kind of behaviour by them would certainly undermine faith in them fairly fast.

They need to seriously rethink this. I'm still a member, but this will make me reconsider when renewal time comes round.

Yep, @Arnie Pye - John Hancock - a large US insurer. It was listed under the news items yesterday under the BBC red button.

You can, but would teenagers leave it alone? You might need to be able to lock them out. The interfacd is specifically designed to be attractive and draw you in, join up with other people etc. Based purely on my personal experience I disagree. If the patient has any additional issues such as...

I think that's the problem with any treatments if they are used inappropriately. They not only harm the individual treated, but also others who might actually benefit are put off.

Another thing that occurred to me re the use of actometers vs fitbit type devices that communicate with smartphone apps is that you wouldn't necessarily want the interaction. The smartphone apps are deliberately written with use of colours etc, to keep us using them. So a kid who is checking...

Sorry, but in my book someone who continuously retrains as lots of different things is either: Training in cr@p things that don't work and feels the need to keep offering ither cr@p to keep clients coming back Or Is cr@p at lots of things. It certainly doesn't mean the person is any good, or...

My understanding of the actometers is that they measure rest as much as activity and therefore the devices are probably always left on. I am sure they record events such as being powered off, powered on and charged etc. I know with wrist worn fitness devices like fitbit triggering alerts use...

They are certainly better than a diary, but I question whether they are accurate enough for use in a trial. For some the difference in activity is very small. Many of the devices in the market don't have the tolerances to cope with that. I know I can fool my device quite easily - it sees some...

I'm guessing here but I know from speaking to a very knowledgeable and helpful chap from their telephone helpline that fitbit (as of circa 18 months ago or so) are not designed to be, and should not be used as a medical device. Guessing some more- the accelerometers are presumably calibrated...

Wish I could help out in person @Hell..hath..no..fury... Will be here for a virtual :hug: if you need one.

So sad that young people, children are left to carry the burden society should share. It's not just costing these children their childhood, but the extra burden ultimately has a knock effect on their adult lives as well.

Nothing to see here. Please move along.... Reminds me of someone *headscratch*

Bolding mine. Have they? Did they specifically and deliberately exclude patients who suffered from distress caused by IBD? Can Trudie et al prove that? Trudie doesn't seem to have been bothered by her co researchers claiming at various times they were studying ME when their entry criteria was...