Search results

I am certainly not dismissing other people's choices in how they treat their ME. If they choose and have the time, energy, funds to try supplements that's their decision. If they want to discuss how supplements help them,personally, also fine. However, I would also say that over the years I...

I agree with much of what you say Trish. However In my experience female doctors can be just as bad, if not worse than some of the guys. As you say - But it's also true to say that in history women have upheld the stereotype /discrimination as much as men. Just because they're women...

I agree. However, I got caught in a logic loop. I developed ME and then, more or less accidentally, discovered I am actually deficient in and struggle to absorb certain things. When these deficiencies are addressed weird symptoms that pre date the ME disappear. When I stop supplementing the...

I agree the whole supplement thing is a fine line that's hard to judge @Jenny TipsforME. I know that I do have some specific deficiencies, because I got very lucky and managed to see someone who was qualified and experienced. They worked mainly for the NHS though the NHS wouldn't pay for my...

From my experience as an ME patient, many of the patients I know do take a hit and miss approach to supplements. I'd bet good money that many of the "experts" they have seen prescribe pretty much the same supplements to everyone who comes in with a specific diagnosis. One of the problems we...

Sorry to hear you're struggling @Squeezy :hug:. Nope, I didn't try the NAC in the end - contraindicated for hypothyroidism. Even though I take my replacement T4, it's just not worth b*ggering up my thyroid hormone balance. I have added in BCAA. I have found they take the sharpest edge of PEM...

I also believe that schools these days use psychologists. So a child may end up being seen by the school psych on a teachers say so. Now, I am sure for many that's a good thing, but I'm equally sure that it's a bad thing for others. Think of a kid in the early stages of ME for example. The...

I am sure there are a great many people who have undergone what you refer to as "normal" psychology @Hip . However, there are people who are harmed by it too. Instances of people I know for example - A lady whose relationship with a close family member and a (non abusive) childhood event...

Yep..and I haven't even had the fun of a few glasses of wine beforehand to explain it! I've also discovered that missing your mouth with a fork hurts too. Ouch! Luckily, the only real damage was to my pride.

I did actually fall during my Romberg test, but I was all over the place apparently. Apart from that you could be describing me. For ages I couldn't figure out why I kept breaking the edges of my finger nails- it was because I kept bashing them into the front edges of shelves and tables when...

I have little to no experience of normal psychology and how that might aid the human race. However, time and again, I have seen people who should know,or have been taught better, attribute incorrect meaning to someone's behaviour. So, because they "know" , or have read about people, they...

About 5 years ago into my illness, I would have said very gentle yoga helped me. However, my illness progressed. It may even be that as my flexibility improved, I routinely did a little too much and, although it was initially helpful, it likely contributed to an overall decline. When...

I agree with much of what you say above @Hip However, an observation - the prescription of religion has often been divisive among those from different religions. In addition they have shown a marked intolerance of individuals from within their own group who don't fit the mould. Similarly...

Yeah, even if it was just some of the material we have such as the letter to the Lancet with all the signatories, a copy of the psychology journal......

About the author - google blurb on her book: Jack of all trades.....

I think there is also a further layer - balancing physical vs mental health. Like @large donner, occasionally, I get to go out for an hour or so. Having been careful the day before and gotten extra rest that morning I go for a coffee & cake or lunch. Then, back home, I rest again. For the...

All they have to do is say that the article is being posted as a news item and not as an endorsement of the contents of the article. Then link back to the advice guidelines they give. The bolding is mine - these are two massive bear traps that I fell into. With some people experiencing a 3...

Is it just me or does that sound like a gathering for those suffering psychosomatically rather than those aiming to treat?

Exactly. I've not tried LP and certainly don't plan to, but the swimming, yoga, walking..... Frankly, that is what caused me to slide from being moderately ill to severely ill with some nasty, scary times along the way. Also, I think these categories can be a problem. CS may talk about mild...

Graham, I have no wise words, just thank you for being generous with your time and energy. :thumbup: