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I am, but really only for the heart rate variability reading, which seems to have no relation to how I am actually doing, and resting heart rate reading, which seems to have some. I don't pay any attention to the 'stability score', it seems unable to reflect how I'm feeling.

Abstract Patient and public involvement and engagement (PPIE) can provide valuable insights into the experiences of those living with and affected by a disease or health condition. Inclusive collaboration between patients, the public and researchers can lead to productive relationships...

"Patient-led start-up Visible has launched two app-based health studies in collaboration with researchers at Imperial College London. Since it launched in November 2022, over 30,000 people with Long COVID or myalgic encephalomyelitis / chronic fatigue syndrome (ME/CFS) have been using the...

Editor’s summary Patients with heart disease frequently present with low melatonin levels and show disruptions in their sleep–wake cycles. Although disordered sleep adds considerably to the overall disease burden of these patients, the mechanisms that underlie this phenomenon remain unclear...

Mucosa-associated invariant T (MAIT) cells are MR1-restricted, innate-like T lymphocytes with tremendous antibacterial and immunomodulatory functions. Additionally, MAIT cells sense and respond to viral infections in an MR1-independent fashion. However, whether they can be directly targeted in...

(Merged) Final paper - paywall Extensive research links regular physical exercise to an overall enhancement of cognitive function across the lifespan. Here we assess the causal evidence supporting this relationship in the healthy population, using an umbrella review of meta-analyses limited to...

Pre-print (free access) Abstract Extensive research links regular physical exercise to an overall enhancement of cognitive function across the lifespan. Here, we assess the causal evidence supporting this relationship in the healthy population, using an umbrella review of meta-analyses limited...

Agree with whom? I was making the point that there is no evidence that the major charities aren't willing to work together, or that they think that small projects are the most likely way to bring about substantial change.

"And we need our charities to understand that we're not likely to achieve a research breakthough through small, charity-funded research projects." Personally I feel that is misrepresenting our charities. Is there any evidence that they believe that we are "likely to achieve a research...

Trial By Error: Psych Medicine’s Non-Responsive Response to a Request for Correction of Prevalence Rates Cited in FND Paper "I have recently sent out a few letters to major journals seeking corrections in articles that have mis-reported the estimated prevalence of functional neurological...

"The 2011 paper is a systematic review conducted by US psychologist, Prof Priscilla Coleman. It concludes that women who've had an abortion have an 81% increased risk of developing mental health problems." "When Prof Coleman's paper was first published in 2011, 10 letters were sent to the...

"An independent panel resigned in a row over controversial research about the impact of abortion on the mental health of women, BBC News can reveal. The research, which is still being used in US legal cases about limiting access to abortion, was published in the British Journal of Psychiatry...

Background To determine the extent and nature of changes associated with COVID-19 infection in terms of healthcare utilisation, this study observed healthcare contact 1 to 4 and 5 to 24 weeks following a COVID-19 diagnosis compared to propensity-matched controls. Methods Two hundred forty nine...

It was probably here, Anomalies in the review process and interpretation of the evidence in the NICE guideline for (CFS & ME), 2023, White et al but a bit more info about her "I am a neurology consultant, seeing patients with all neurological conditions and sub-specialising in movement...

"Expanding the diagnostic criteria for FND: can fibromyalgia, irritable bowel, ‘post-concussion syndrome’ chronic fatigue syndrome all have the same pathophysiological basis? Should the DSM/ICD criteria be updated?" And there is the answer to the question, why did do many FND 'experts' sign the...

Draft minutes available for the meeting 14th June 2023 here, https://appgme.co.uk/meetings/severe-me-appg-meeting-14th-june-2023/

Same team as discussed here Genetic Risk Factors for ME/CFS Identified using Combinatorial Analysis, 2022, Das et al Blog: New Study Links 14 Genes to ME/CFS

Merged thread Post-COVID sequelae effect in chronic fatigue syndrome: SARS-CoV-2 triggers latent adenovirus in the oral mucosa 2023 Hannestad et al The post-viral fatigue syndromes long COVID and myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) have multiple, potentially...

Background Interstitial cystitis/painful bladder syndrome (IC) is a chronic pelvic pain condition which has high comorbidity with other nociplastic, or unexplained, pain disorders [e.g. fibromyalgia (FM), irritable bowel syndrome (IBS), and myalgic encephalomyelitis/chronic fatigue (ME/CFS)] and...

How many participants did they speak to?