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For those who need a direct link to the comment article, https://www.thelancet.com/journals/laninf/article/PIIS1473-3099(23)00053-1/fulltext

"Significantly, though, the OHCs [Online Health Communities] studied here pose no threat to the more fundamental idea that science is the path to better health care; both ME/CFS and Long Covid patients are notable for their unshakeable confidence in biomedical science." Unshakeable confidence...

Not sure I agree with this [bolding mine], "In the consultation [of the 2007 NICE Guideline] over the surveillance proposal, OHCs shifted much of their effort from trying to get patient surveys taken more seriously to trying to get RCTs taken less seriously. The committee that drafted...

Mindfulness better than CBT for treating depression, study finds "Practising mindfulness is much better than taking part in talking therapies at helping people recover from depression, a British study has found. People who used a mindfulness self-help book for eight weeks and had six sessions...

Full title: Clinical Effectiveness and Cost-Effectiveness of Supported Mindfulness-Based Cognitive Therapy Self-help Compared With Supported Cognitive Behavioral Therapy Self-help for Adults Experiencing Depression The Low-Intensity Guided Help Through Mindfulness (LIGHTMind) Randomized...

"#TREATME Update: 1. Over 3,600 responses! 2. This Tuesday I zoom with experts involved in complex chronic illness research & machine learning to review survey & discuss plans for analysis! 3. Due to requests, I'm keeping the survey open an extra two days thru Tuesday."

I'm sure you will all be excited to learn that we have made the first version of our data analysis plan available on our website. Read our blog about what it is, why it is important, and why we are sharing it in our blog, https://www.decodeme.org.uk/our-gwas-data-analysis-plan/ Social media...

My best guess is that it has been blocked due to second- or third-hand connections to accounts that TG took offence at. This earlier post from Jan 2021 links to a Twitter poll that shows, at the time, 67% of 678 respondents reported having been blocked by TG, so I don't think her blocking...

I've asked for the forum account to be unblocked, though I'm not holding my breath for it to happen.

The term “long COVID” or variations refers to secondary conditions following infection from severe acute respiratory syndrome coronavirus 2 (SARS-CoV-2) persisting for ≥ 4 weeks.1 Long COVID symptoms are complex. Symptoms may include fatigue, shortness of breath, headache, difficulties...

Published papers thread for w/c 20th March Facebook: https://www.facebook.com/sci4me/posts/pfbid032mLpEVjE6UaByST3cbkQ7MXhnTctkhziNqbAeZ7SzuCrVgsFiueaQpCxAmysY9nTl Mastodon: https://med-mastodon.com/@s4me/110094534414443455

EMRGecr (European ME Research Group early career researchers) Workshop/conference 2nd June 2023 "To (re)initiate the network we have arranged a new young/ecr workshop to take place on 2nd June 2023 at the Wellcome Genome Campus near Cambridge, UK, in parallel with the 15th International ME...

@MSEsperanza I'll pass your suggestions and observations on to the team. As Binkie notes, some parts of our sample system work quickly, others parts not so much. In general, the parts that work quickly are the ones directly under our control, while the slower parts are where we have to rely on...

Functional Neurological Disorder Emerges After COVID Infection, Vaccines ""We show for the first time evidence from a multicenter national study that FNDs after COVID-19 infections and vaccines are more common than previously reported and have distinct clinical profiles," Alonso-Canovas told...

News in Brief posts for w/c 20th March. Facebook: https://www.facebook.com/sci4me/posts/pfbid02KCreyDDf89W2VjMG2MsrzzKK7nGvvJk4H8xMBDXmwnkF9A6C1JcCNQzDE4HU1mRtl Mastodon: https://med-mastodon.com/@s4me/110089234178729898

Background The importance of involving members of the public in the development, implementation and dissemination of research is increasingly recognised. There have been calls to share examples of how this can be done, and this paper responds by reporting how professional and lay researchers...

Background Patient and Public Involvement (PPI) groups are becoming more established as collaborators with academic researchers and institutions to ensure that research is important and relevant to end users, and to identify areas that might have ethical considerations, as well as to advise on...

Background to commentary Patient and public involvement (PPI) in research is now widely expected and encouraged at all stages of the research cycle. PPI members provide expert knowledge of the lived experience and their contribution is crucial. The plethora of publications on PPI has increased...

Reply to: Hypothetical model ignores many important pathophysiologic mechanisms in fibromyalgia, 2023, Pinto et al "In sum, we do not disagree with the substantive points in the correspondence from Clauw et al.1, but we do disagree with how our paper2 is summarized. We primarily aimed for a...

Hypothetical model ignores many important pathophysiologic mechanisms in fibromyalgia, 2023, Clauw et al "We would like to respond to the Perspective article by Pinto et al. (Pinto, A. M. et al. Emotion regulation and the salience network: a hypothetical integrative model of fibromyalgia. Nat...