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Exercise Reporting Template for long COVID Patients: A Rehabilitation Practitioner Guide 2023 Gradidge et al

Discussion in 'Long Covid research' started by Andy, Mar 27, 2023.

  1. Andy

    Andy Committee Member

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    Location:
    Hampshire, UK
    The term “long COVID” or variations refers to secondary conditions following infection from severe acute respiratory syndrome coronavirus 2 (SARS-CoV-2) persisting for ≥ 4 weeks.1
    • Long COVID symptoms are complex.
    • Symptoms may include fatigue, shortness of breath, headache, difficulties focusing, “brain fog,” heart palpitations, joint or muscle pain, and unexplained hair loss, among other symptoms.2
    • Long COVID is associated with reduced quality of life, physical functioning, and lower endurance with physical activities.3
    • Tailored exercise rehabilitation programs can improve these symptoms.4
    The purpose of this Information/Education page is to provide rehabilitation practitioners with information on how to track and/or monitor exercise in patients with long COVID using a reliable and valid tool.

    Open access, https://www.archives-pmr.org/article/S0003-9993(23)00111-9/fulltext#

    No mention at all of PEM, PESE or tracking of harms....
     
    Hutan, RedFox, DokaGirl and 4 others like this.
  2. Trish

    Trish Moderator Staff Member

    Messages:
    51,870
    Location:
    UK
    It's basically a supervised several days a week GET program with some symptom and physiological tracking to help determine rate of increase of activity.

    • acute physiological responses to exercise were visible to the patient and CEP.

    • The patient's own data was used to develop subsequent exercise sessions using an online app, considering objective measures (e.g., physiological responses to exercise, oxygen saturation, resting blood pressure) and subjective feedback (e.g., RPE, dyspnea rating, symptoms).
     
    Hutan, bobbler, Grigor and 4 others like this.
  3. bobbler

    bobbler Senior Member (Voting Rights)

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    Who is guessing it is definitely not valid to the condition then - so who knows what it is 'reliable' for or who or what purpose it therefore thinks it is a tool for.

    Or is it just theatre? Most important thing being it keeps to x amount of sessions, because you've a 'lesson plan' and if it doesn't go to that plan someone's wrong?

    I'm beginning to realise that in this area they are so obsessed with 'must measure something' that the whole ability to know why or what they are doing has gone out of the window. Focus on what is easiest for them to measure instead of what is the right thing to measure? Don't focus on what you can't control (but is the whole purpose of what you are doing: not harming people, and improving their condition or finding out more about what is wrong with them) - a la 'nonsense-type-'CBT'' (make your job easier by changing your perceptions and gaslighting and pushing patients inadvertently to get your own way, used to be known as surly-person who 'assertively' treats you like an object because they are naively sure of themselves for no reason other than they know what works for them) nonsense?

    It's basically measuring their job, proving they are doign 'something' with their time, and justifying that if they are doing what they fancy or have been told to do for someone else's agenda or purpose, that here is where the money went. No incentive at all to think about whether methods looking at whether it could be improved, or you could find out more about the condition or what you normally have measures for. Just pretending it is a treatment that definitely works so why would we want to know any different.

    In reality that is actually 'aping being a professional with a method that is either scientific, or using clinical instinct and taking scientific measures to move forward' - they just haven't realised I guess

    I find that so weird and unprofessional having worked in other areas. As one tutor said: people do 'research' for a few reasons: one is that they want to find something out, another is that they want to justify what they've done, a third is to try and justify doing what they fancy doing. You'd expect less acceptance of and being fooled by the politics and pretend science in medicine and 'allieds', but it seems there is more.
     
    Last edited: Mar 27, 2023
    Peter Trewhitt, Amw66 and RedFox like this.
  4. bobbler

    bobbler Senior Member (Voting Rights)

    Messages:
    2,313
    Here's something that will make it look like you know what you are doing...
     
    Hutan, Peter Trewhitt and RedFox like this.
  5. Andy

    Andy Committee Member

    Messages:
    21,810
    Location:
    Hampshire, UK
    Trial By Error: Why Are Exercise Studies for Long Covid Still Failing to Address PEM Adequately?

    "No ”exercise reporting template” for long Covid is acceptable if it fails to include a recommendation of rigorous pre-screening for PEM/PESE. Since many patients themselves might not be aware of this symptom and might not understand why their efforts to improve were being met with serious setbacks."

    https://www.virology.ws/2023/03/29/...-covid-that-overlook-post-exertional-malaise/
     

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