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  1. Andy

    Biopsychosocial complexity in functional neurological disorder 2023 Joos et al

    Background Functional Neurological Disorder (FND) is considered a biopsychosocial disorder nowadays, with chronicity in >50% of cases. The INTERMED Self-Assessment Questionnaire (IMSA) assesses the various domains and indicates biopsychosocial complexity. Objective FND patients were compared...
  2. Andy

    Closed UK: DecodeME updates, was recruitment thread.

    We are likely to close recruitment at the end of this year.
  3. Andy

    Closed UK: DecodeME updates, was recruitment thread.

    That we will count our chickens when they hatch. Obviously this will help a lot but I wouldn't want to make a prediction yet.
  4. Andy

    State of Mind: Is Long COVID Linked to Mental Illness?

    David Tuller has tweeted about this article. Thread
  5. Andy

    Closed UK: DecodeME updates, was recruitment thread.

    Sorry, no. By necessity everyone's answers will always be a snapshot of them at the time of completing the questionnaire.
  6. Andy

    Review Neuropsychological evaluation of functional cognitive disorder: a narrative review 2023 Silverberg and Rush

    Objective: To critically review contemporary theoretical models, diagnostic approaches, clinical features, and assessment findings in Functional Cognitive Disorder (FCD), and make recommendations for neuropsychological evaluation of this condition. Method: Narrative review. Results: FCD is...
  7. Andy

    Nature: Long COVID: answers emerge on how many people get better, 2023, Marshall

    Long COVID: answers emerge on how many people get better "More than three years after SARS-CoV-2 began its global spread, an estimated 65 million or more people1 are still living with the often devastating effects of long COVID — and scientists are still struggling to understand this complex...
  8. Andy

    Letter: The overview on current evidence for the treatment of ME/CFS is based on the principles of scientific assessment 2023 Ludwig et al

    Paywall, https://link.springer.com/article/10.1007/s00115-023-01516-1 Unhelpfully no preview is available at all. But given the title, the German authors and text, and the references given, I suspect that it is some sort of defence of BPS ideology in relation to ME/CFS. Perhaps somebody who...
  9. Andy

    Closed UK: DecodeME updates, was recruitment thread.

    Indeed, that will be made clear when we publish our final results. We are not making it clear before in order to reduce the risk of biasing recruitment. In short, nothing. The data analysis plan, which can be read here for anybody else interested, always needed to be able to accomodate...
  10. Andy

    Closed UK: DecodeME updates, was recruitment thread.

    I don't have the exact figure but it is, relatively, a very small number (<1k) compared to the pre-Covid.
  11. Andy

    The Hindi Version of International Consensus Criteria: A Cross-cultural Adaptation and Validation Study for... 2023 Shah et al

    Full title: The Hindi Version of International Consensus Criteria: A Cross-cultural Adaptation and Validation Study for Myalgic Encephalomyelitis in Post-COVID Patients Abstract Context: Fatigue is the most prominent feature of long COVID. With the increasing burden of long COVID cases...
  12. Andy

    Closed UK: DecodeME updates, was recruitment thread.

    Approx 7k who have already taken part and weren't previously asked for a sample will now receive an invite; the ameneded criteria has been live on our system for a short while so all recent new participants will have been assessed with it.
  13. Andy

    The Netherlands - €28.5 million ME/CFS research program - ZonMW funding awards announced April 2023

    I am personally very aware and take them very seriously. I can also confirm that, despite claims that I have seen elsewhere, DecodeME are not in any formal collaboration or partnership with ME/CFS Lines.
  14. Andy

    Closed UK: DecodeME updates, was recruitment thread.

    Twitter and Facebook posts on this update. Facebook: https://www.facebook.com/decodeMEstudy/posts/pfbid0F64qteutoCGxTj3CHxypTi8ux5i4hRfJEvvxcqs44tqo2S6XxgXnCt31WqDcXbxol
  15. Andy

    International: Science for ME social media posts

    Published papers thread for w/c 19th June Facebook: https://www.facebook.com/sci4me/posts/pfbid0JVX2ZqqKT9NUru6nJeCffAntpJreKCt28B73WTqvEzfgZNUU5RgnBDTSXd2wvuVZl Mastodon: https://med-mastodon.com/@s4me/110609439577082109
  16. Andy

    Closed UK: DecodeME updates, was recruitment thread.

    New blog Inviting More Participants to Donate DNA DecodeME can now invite even more people to donate their DNA. This is because we will apply an additional scientific method to ensure that our genetic findings are due to ME/CFS and not to common co-occurring conditions. This new...
  17. Andy

    Letter: Disrespectful language about patients with long COVID 2023 Pelosi

    "The Lancet's careless discussion of psychosomatic conditions mirrors disrespectful language that can be encountered in medical, surgical, and even psychiatric clinics throughout the UK. The Editors could make amends by using their writing skills to try to improve doctor–patient communication...
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