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"Qualitative research with applicants, employers and delivery staff’, which included a case study for an applicant with ME. The individual in question returned to employment in a call centre role after 10 years off due to ill-health. Through Access to Work, they received a suitable chair and...

When I need more desmopressin and am urinating a lot, it is almost colourless - almost pure water by the look of it (although it may contain some solutes, such as sodium).

I used to have extreme urination - looking back I think I was always prone to it for as long as I remember, and it landed me in hospital once with severely low blood sodium. I now take desmopressin - have done for many years - and it makes a huge difference. I have really had to fight for it...

An awful lot of erroneous repetition of 'CSF' instead of CFS too.

Found them - they're at https://biobloom.at/en/shop/ From a quick look they don't seem cheaper than Healthspan, especially when you add the postage (and the lack of peppermint flavouring?), but my brain isn't working that well at present.

The Healthspan one is flavoured with peppermint, and not unpleasant at all.

I expect so - this refers to the product High Strength CBD Oil 250 mg oral drops 2.75% by Healthspan. I've decided to try 3 drops per morning from today.

I can't report on pain, as I don't have any/much, but the CBD oil I've had so far doesn't always get me to sleep or help me sleep through the night. I'm having about 2 drops each morning (and no more later), but may try more in time. You're supposed to be able to have up to up to 8 drops up to...

It seems to have been started in 2010!

I know some people here take gabapentin or tricyclic antidepressants, but don't know if anyone has diabetic neuropathy. Allan S. Brett, MD reviewing Randolph AC et al. J Am Geriatr Soc 2019 Jun Gabapentinoids and tricyclic antidepressants might predispose these patients to falling. Tricyclic...

This page about flatulence/methane production may be of interest: https://en.wikipedia.org/wiki/Flatulence I found this line especially interesting: "The prevalence of methane over hydrogen in human farts may correlate with obesity, constipation and irritable bowel syndrome, as archaea that...

I've assumed that I do fit in here, although my symptoms are overwhelmingly in the lower gut (below the waist) and I get very little pain. I was diagnosed with IBS before ME, pretty-well got rid of it through a lower-carb, gluten-removed diet (plus a few other things, and I was vegan for years...

You may have given me a 'light-bulb' moment! I recently started supplementing l-glutamine again, and within 3 days started getting a blocked ear (right one this time, although it feels as though the left one is slightly as well). I decided this morning, before seeing your post, to lay off the...

I'd be interested in hearing about circulatory disorders in ME/CFS, if they include hypertension.

Source: Chapter in Book 'Long term: essays on queer commitment' Date: June 14,i 2019 URL: http://sro.sussex.ac.uk/id/eprint/84301/ Unhealthy attachments: myalgic encephalomyelitis/chronic fatigue syndrome and the commitment to endure ----------------------------------------------------------...

This is a report on the research - I think that the paper can be accessed from it. Source: McGill University Health Centre Datd: June 19, 2019 URL: https://muhc.ca/newsroom/news/gut-bacteria-associated-chronic-pain-first-time Ref...

Merged thread Source: U.S. Federal Register Vol. 84, #117, pp 28227-28235 Date: June 18, 2019 URL: https://www.federalregister.gov/documents/2019/06/18/2019-12682/schedule-for-rating-disabilities-infectious-diseases-immune-disorders-and-nutritional-deficiencies...

Just heard an interesting programme featuring descriptions of UK disability tribunals, like the fact that (I think) 2/3 of rejections for disability get overturned at these tribunals, plus suggestions of future online versions. It included someone with fibromyalgia (among other things) and a...

https://www.parliament.uk/business/publications/written-questions-answers-statements/written-question/Commons/2019-06-19/266885/ Stephen Morgan To ask the Secretary of State for Health and Social Care, what assessment he has made of the effectiveness of the existing NICE guideline on myalgic...

Morven-May MacCallum says her life is still "completely dominated" by Lyme disease, nine years on from starting treatment. About 200 people a year in Scotland are recorded with the disease but the true number is thought to be much higher. The disease is a bacterial infection spread by a bite...