Search results

  1. NelliePledge

    How to learn skilled communication in primary care MUS consultations: a focus group study, Houwen et al, 2021

    Insufficiently equipped in communication yet basically their whole job is communicating insufficiently equipped in delivering embarrassing BS “models” convincingly to patients
  2. NelliePledge

    Anyone recommend an ultralightweight hoover?

    Also if you’re able to get the vaccine at some point presumably can get help again and they can start off by doing deep clean session(s) to deal with accumulation.
  3. NelliePledge

    Anyone recommend an ultralightweight hoover?

    I think g tech do an electric sweeper that would probably be much lighter than a vacuum cleaner
  4. NelliePledge

    Methylphenidate (Ritalin)

    Googled this as I dont know drug names. Common name is Ritalin which I had heard of.
  5. NelliePledge

    International: World Health Organization News (news relevant to ME/CFS, Long Covid and related conditions)

    Although I had a quick flick through her slides and I couldn’t see any mention of ME on them even on the PEM slide.
  6. NelliePledge

    Development of an eHealth programme for self-management of [PPS]: a qualitative study on user needs in general practice, Rask et al, 2021

    :banghead::banghead::banghead::banghead::banghead::banghead::banghead::banghead::banghead::banghead::banghead::banghead:
  7. NelliePledge

    Independent advisory group for the full update of the Cochrane review on exercise therapy and ME/CFS (2020), led by Hilda Bastian

    Blimey that’s just a cut down version of the previous response. Do they realise how shabby this makes them look.
  8. NelliePledge

    Open GEM study - Prevalence of genetic diseases in ME/CFS patients, 2022, Esther Crawley, Bristol University

    Presumably this has been generated by the drug company and of course involvement in this will enable that team to present themselves as bio as well as psychosocial.......
  9. NelliePledge

    Non-hospitalised Children & young people (CYP) with Long Covid (The CLoCk Study), 2021, Stephenson and Crawley

    What a surprise :banghead::banghead::banghead::banghead::banghead:
  10. NelliePledge

    Who Are We Without Our Jobs? — The Cut

    it took me 2 years post diagnosis of struggling to keep working part time. I was lucky to be advised in a private consultation that pushing to work would be detrimental to my health going forward. This was so helpful in helping me to realise I needed to put my health above continuing to work...
  11. NelliePledge

    The benefits of Qigong exercise for symptoms of fatigue A protocol for systematic review and meta-analysis, Wang et al, 2021

    I have been to a couple of sessions yoga class organised through a local ME group. I could manage the stretches lying down but kneeling etc were too difficult. a good 1/3 of the hour was a lying down with lights dimmed guided meditation this was a lot more feasible than anything involving...
  12. NelliePledge

    The benefits of Qigong exercise for symptoms of fatigue A protocol for systematic review and meta-analysis, Wang et al, 2021

    Given this type of exercise normally involves standing I wonder if the researchers have given any consideration to orthostatic intolerance.
  13. NelliePledge

    Norway: Røysumtunet, a centre for severe ME patients

    Sounds a really positive development :thumbup:
  14. NelliePledge

    Reality of ME. How would you get this across (briefly) using words or graphics?

    Yes definitely have used this. Although as phones don’t tend to have the same battery problems nowadays compared to the earlier days I think this might not work so well for younger people.
  15. NelliePledge

    Reality of ME. How would you get this across (briefly) using words or graphics?

    There’s an image that’s a drawing of a woman lying face down with batteries that aren’t in the place in her back where they should be. I can’t find it will look again later.
  16. NelliePledge

    Reality of ME. How would you get this across (briefly) using words or graphics?

    This cartoon is a pretty good way of communicating the less severe end of ME https://laurachamberlain.co.uk/2016/06/24/a-printable-version-of-the-me-adventures-comic/
  17. NelliePledge

    Psychological therapies. Discussion thread.

    I have had and continue to have a very positive experience of humanistic counselling and I’ve said many times the low intensity IAPT CBT I went through in 2016 was robotic.
Back
Top