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One of the things that puzzles me is why the law should consider a campaign to be less legitimate than an individual acting alone. If the law is discouraging collaboration and encouraging people to act alone it seems likely to result in more FOI requests and therefore more disruption – the...

I asked Caroline from the Biobank about this the last time she came to take samples from me. She said it was something the Biobank team were looking into – in fact I think she said they had a meeting scheduled about it the next day. Do know anything more about it @Jonathan Edwards?

As I said on the other thread, I think @Tom Kindlon and @Carolyn Wilshire ’s response is perfect. Thanks again to both of you. I’ve shared the PACE authors’ admission with Tim Hartford (BBC More or Less) and David Colquhoun on Twitter. Can anyone think of anyone else it might be worth sharing...

If someone could add a comment below the Times article with a link to my article that would be very helpful. Meanwhile...

https://www.meaction.net/2019/03/25/a-response-to-dr-mark-porters-article-about-me-in-the-times/ I actually started writing the article as a post on S4ME but as it got longer I decided to submit it as an article for #MEAction. If you feel I’ve overlooked anything I should have mentioned, or...

There were also 3 letters in response to Liddle’s article. There are many adjectives which come to mind when thinking about how to describe Liddle but brave is not among them.

I understand the important point you’re making, but I think you’re being over cautious. The article doesn’t say that #MEAction is opposed to any other types of research, it just states the need for biomedical research. In fact, the article makes no comment on psychological research per se, so I...

Remember that anyone can volunteer to join #MEAction and help to produce articles like this, as several S4ME members have. I don’t do nearly as much as many others, but I like the fact that I can chip in as and when I feel able to, without any pressure or expectation. Of course, there are...

And possibly Hofstadter’s Law: “It always takes longer than you expect, even when you take Hofstader’s Law into account.”

Not at all. I think the tone is perfect. As I’ve said before, sometimes you need to turn down the volume in order to be heard. And there are some beautifully understated lines. I particularly like the subtle references to Sharpe and colleagues’ beliefs. This is my favourite bit: I also think...

Hang on, haven’t we just agreed that all illness is biological? So if ME is an illness it must surely be biological.

If there is a continuum from neurological to psychiatric, I would guess that Alzheimer’s is somewhere in the middle. But I’m no expert! I think that is a very troubling statement – particularly for people with psychiatric illnesses. There is a reason why all psychiatrists are qualified medical...

Jo, I wonder if you might consider writing an article – perhaps for @dave30th ‘s blog – on why you think the physical disease v mental illness argument is wrong. It’s something which gets discussed a lot on here but doesn’t seem to be heard by the wider community. I agree with most of what you...

Thanks for the transcript @Lucibee. Much appreciated. Here’s my alternative take on what MS might have said: MK: “There have been criticisms though, haven’t there, about the methodology – the Journal of Health Psychology said that the results are at best reliable [sic]...

Moderator note: Most of the Liddle piece had to be edited out as the forum cannot breach the copyright. [Edit: Apologies to moderators. If anyone wants a copy of the full article send me a pm] Liddle is so widely despised I wonder if having his guns pointed at us may actually be a positive...

Mike Godwin re-joins the conversation: Meanwhile, Dr Kate Stein appears to have deleted her tweets supporting Sharpe. I infer this because the Tweets now appear as “unavailable” on my Twitter feed but when I click on her Twitter handle I do not appear to be blocked:

This is great news! I knew you were thinking about it but I didn’t know it was fixed. This is exactly the right approach. Can Grand Rounds be live streamed or recorded?

On occasions I have sent private messages to people, politely asking them to delete inappropriate messages, and explaining how they can be counterproductive. (If they don’t follow me, I ask them follow me so I can send them a pm.) On the few occasions I’ve done this I’ve found it to be...

I guess it could. But I welcomed the House of Commons debate and I was disappointed that it didn’t get more coverage in the media. Sadly, ME research has become a political issue, and I therefore think it is right that MPs should represent the concerns of their constituents who have been so...