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  1. J

    Appeal to the FTT for information from QMUL rejected

    The way I see it is this: they recognize there has been a burden on QMUL (even if some of it has been self-inflicted) and they accept that there has been a lot of requests (and I have made a few of them), and as they point out, I have pretty much had the second part of my request handed to me...
  2. J

    Appeal to the FTT for information from QMUL rejected

    Hehe. I'm not altogether surprised to hear some may not have managed every word.
  3. J

    Appeal to the FTT for information from QMUL rejected

    Hehe. Yes, I imagined you had, but in case anyone saw 22 pages of a PDF and thought 'too much text' and not read it through.
  4. J

    Appeal to the FTT for information from QMUL rejected

    I view this decision more positively than others. I think it's important to read it in the context of the notice by the ICO which upheld QMUL's exemption, and was highly damaging, and that of previous decisions by the Tribunal. I also think it should be read as a legal document which means...
  5. J

    Appeal to the FTT for information from QMUL rejected

    Just to clarify, this decision was not about the data. QMUL has already agreed to try to provide the trial data I requested. This was about some information relating to harassment I asked for.
  6. J

    Appeal to the FTT for information from QMUL rejected

    Decision here. https://www.dropbox.com/s/kc9ezxfk51t1eu5/014%20040419%20Decision.pdf?dl=0
  7. J

    Podcast: "It's Not All About ME"

    Thanks, Peter.
  8. J

    Podcast: "It's Not All About ME"

    Thanks, Snowflake.
  9. J

    Podcast: "It's Not All About ME"

    Thanks, Jo. That's interesting what you say about the processing both in itself and as a reminder of another consequence of their model and how it was adopted: they stopped listening to patients. I and others were saying these things back in the late 1980s.
  10. J

    Podcast: "It's Not All About ME"

    Thanks, Michiel. And thank you for going to the trouble of transcribing some passages.
  11. J

    Podcast: "It's Not All About ME"

    Thanks, Ezzie.
  12. J

    Podcast: "It's Not All About ME"

    Thanks, Trish. You express it just as well. I think it's something we all know.
  13. J

    O'Dowd-Crawley early intervention study

    As I thought, they haven't posted the patient-level data. This is what they have uploaded: 'basic results'. Any thoughts? Worth going after the patient-level?
  14. J

    Biological markers evaluated in randomized trials of psychological treatments for depression: a systematic review & meta-analysis (2019) Cristea et al

    I haven't looked at this, but it sounds interesting and relevant. It is accepted by the CBT-GET promoters that there are biological changes in patients with ME. A key part of their argument has always been that psychotherapy can bring about or reverse biological changes. Here is a study that...
  15. J

    Response to Michael Sharpe’s claims of harassment

    Yes, I did and I am. @Graham was excellent on his videos as well.
  16. J

    Psychological and demographic factors associated with fatigue and social adjustment in young people with severe CFS/ME (2018) Chalder et al

    Glad to have chipped in a little, Michiel. You worked very hard on this and deserve all the credit. Thank you, and well done on getting it published.
  17. J

    Brian Hughes - If you spend 20 years gaslighting your patients, perhaps you should think twice before accusing *them* of trolling *you*

    One other thing on that picture. It's something I have mentioned on Twitter before. 31 (?, CBA to count again) men and 2 women. Malingering. Hysteria. Delusion. Tired women's disease.
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