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It actually kept coming up as adverts on social media. It came up on insta a few times and I kept ignoring it because i only use Instagram to keep up to date with book releases and Harry Potter news and wanted nothing to do with it. Then it came up on Facebook. Then it came up on Instagram...

That’s surprising. It’s been a month since then.

Did you get a reply Trish? Personally I am happy if someone is studying this. I just want to know how they’re studying it and on what basis. Like a proper study. Because we do need more answers from proper research, and not theories. Until then, theories are taken as fact by some people, and...

No, it’s not like that, it’s on his website. http://www.chiarinsc.com/word/New patient form2xx.doc It’s got some of these things but a lot more. Some of these I can understand being on the questionnaire. Others i really cant. And in most of the categories, there are usually always one or two...

Yes I think you are right.

Somewhere in the booklet it says “your symptoms are real” But.. Elsewhere it says, “you have nothing to lose” And: “ Firstly, let’s begin by better understanding how the human body works. Our body consists of physical body parts (skeleton, skin, muscles, internal organs etc.) and body systems...

Not involved at all. They sent a letter to GP saying I was taking part in the trial. Then later on, when I dropped out of the trial, my GP only knew because I sent a letter to them documenting that I had become ill as a result of the trial, and the nurse who came to visit me documented that I...

Thank you for saying so <3 :) Honestly though, although I am pointing the finger at them, and I can see objectively and always will see that what they are doing is awful and they are in the wrong, what happened has affected me a lot too. I’ve developed a PTSD of sorts and have become more and...

I think both of these scales should not be used at all. Even using those with the word “pain” instead of “symptoms” would cause immense harm. Incidentally has anyone heard of the Curable app? Don’t download it! It’s an app based on “pain science” by “medical professionals” which aims to fix...

I will have to think about what to do. Do you know when the trial results are due to be published? You are right that it was gaslighting and I truly do not understand why it was allowed to happen and still is, under the headline of MUS and PPS. And even chronic pain/fibromyalgia (I went to a...

Definitely. I did feel I have to give the “right” answers and I felt I had to please the therapist as well. And also I felt that was the way to get better - to say it to myself as well.

Hi, as someone who, having read Jeff and jen’s story, made myself more ill by pursuing this avenue - at great personal distress, which I won’t go into here as I’ve detailed it elsewhere, I wanted to say one other thing. Dr Bolognese, when you apply to be a patient, asks you to fill in a long...

:D I agree, it would be really good to gather testimonials as there’s so many of us now.

I said my symptoms were better here. But they were actually worse. (And I dropped out of the trial a short time later). What was wrong with me?! I really would like to know what happened to the other participants in the trial.

This is how I filled in a questionnaire at week 9. I think it’s ok to share this publicly as there is no identifying information...just so people can see what kind of brainwashing I was put through. I can’t believe i ticked / wrote those things. Yes I will share the documents.(have shared by...

There was a follow up of sorts, a few months after I dropped out. “I don't know if you remember me, but I'm the Research Worker on the PRINCE trial - we spoke briefly at the start of the PRINCE trial. I hope all is well with you anyway. I'm just getting in touch with you now as I am inviting...

Quote from the booklet - “The best advice would be to try out this practical approach because nothing will be lost by trying but much may be gained“. Nothing will be lost? I’m in a very bad mood now Another thing is this trial absolutely was graded exercise by the back door. It said CBT only...

I was trying to speak to someone who would submit my case report to someone at NICE. I think at some point someone asked me to send it to NICE with a covering letter but I was so unwell at the time I couldn’t do it myself. I contacted David Tuller about it on Facebook - he didn’t get back to me...

I’m also really worried about how they recorded my data. I had to fill out a sheet every day and the main “record” was I had to focus on something that I did that day that made me really happy - and rate how good/well that made me feel. And that was like a measure of how well I was doing or...

Ok but how can you keep going when you literally cannot speak on the telephone anymore.