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  1. Arnie Pye

    Article : Facebook halts medical data sharing plan

    Why not just give them a fake location and a fake date of birth?
  2. Arnie Pye

    Cognitive Impairments in Fibromyalgia Syndrome: Associations With Positive & Negative Affect, Alexithymia, Pain Catastrophizing.., 2018, Duschek et al

    I've come across the concept of pain catastrophizing before. And it makes me bloody furious that patients are automatically blamed for suffering this. Imagine a patient has a condition that doctors either don't believe in or assume that patients exaggerate the effect. Examples would be anything...
  3. Arnie Pye

    Article : Facebook halts medical data sharing plan

    Is anyone who uses Facebook aware this was even being considered? I bet you weren't! Link for rest of article : http://www.bbc.co.uk/news/technology-43668607 Once Fb has managed to sweep its privacy issues under the carpet I'm sure they will get right back to this idea.
  4. Arnie Pye

    Forward ME Group – Bodily Stress Syndrome

    Should that list of names include "conversion disorder" as well?
  5. Arnie Pye

    The missing link: why disabled people can’t afford to #DeleteFacebook

    I did it about four years ago because I found it so depressing. I've never regretted it.
  6. Arnie Pye

    Myalgia, amitriptyline and alternatives

    If you soak in Epsom Salts that will improve your magnesium levels. Another option is magnesium oil which is sprayed on the skin - it can be bought ready made or it can be made at home very cheaply. Perhaps when you have taken magnesium supplements in the past you have taken one that didn't suit...
  7. Arnie Pye

    Myalgia, amitriptyline and alternatives

    Some people find that they can't tolerate vitamin D supplements. It turns out that low magnesium can cause this. If people improve their magnesium levels they can eventually tolerate vitamin D supplements. Unfortunately the standard magnesium blood test is not very reliable. The body keeps...
  8. Arnie Pye

    Myalgia, amitriptyline and alternatives

    Have you ever had your vitamin D level measured? Do you know if it is optimal? I found that improving my vitamin D level up to optimal (100 - 150 nmol/L or 40 - 60 ng/mL) had an impressive effect on reducing muscle pain. If your doctor won't test it for you, you can get it tested privately...
  9. Arnie Pye

    I've gone nocturnal again :(

    Yes, I always feel at my worst in the mornings. I'm at my best, physically and cognitively, when most people are starting to wind down for the day. So, for example, late afternoon or early evening I can often go to the supermarket and can push a trolley around quite normally and at a healthy...
  10. Arnie Pye

    Trial By Error: A Terrific Piece about ME/CFS on Australian TV | 4 April 2018 | David Tuller

    Excellent video. I'm ashamed to say, however, that until I watched it I had never given any thought to how David Tuller is coping with the work he is doing. He must be under absolutely enormous pressure. I hope that the pressure isn't going to make him ill.
  11. Arnie Pye

    Forward ME Group – Bodily Stress Syndrome

    This article/paper can be found here : http://sci-hub.tw/10.1093/fampra/cmx033 A quote from it : Imagine a patient who has a physical health problem. The doctor doesn't believe the patient and decides they are mentally ill. They also put a code on the patient's notes (I used to know what it...
  12. Arnie Pye

    Forward ME Group – Bodily Stress Syndrome

    Surely that slide in post #10 was produced in 2010, based on what it says in the bottom right-hand corner. Is it still relevant?
  13. Arnie Pye

    Rethinking the treatment of CFS — a reanalysis and evaluation of findings from a recent major trial of GET and CBT (2018) Wilshire et al.

    Via Peter Tatchell's twitter (linked above) I got to this link : https://www.whatdotheyknow.com/request/part_funding_of_the_pace_trial_b A quote from the DWP on that link : Whenever I read any kind of comment like this it always make me think of the Auchwitz entrance with its motto "Arbeit...
  14. Arnie Pye

    Vox published a podcast detailing how “pain acceptance” is “gaining traction” among American doctors as a response to the opioid epidemic....

    The only people who could say such a thing are those who've never suffered long-term untreated or under-treated pain. I suspect that the death rate from suicide will sky-rocket. What use is a doctor who can't or won't help with pain?
  15. Arnie Pye

    Personality and Perfectionism in CFS, 2008, Chalder & Deary

    I've never heard of this man. He sounds like a mysogynist. Why do so many of them decide to go into medicine? Is this him? https://en.wikipedia.org/wiki/Stephen_Straus
  16. Arnie Pye

    Article: ‘You smiled at me so you’re not depressed’: What’s the most patronising thing your doctor has ever said to you about your mental health?

    I had "good manners" drummed into me when I was a child, as well as the idea that I mustn't show I was in pain or in distress because I had to be "stoical". It is like a straitjacket on how I interact with people in all sorts of situations. Looking back I'm not surprised that I was diagnosed...
  17. Arnie Pye

    Merryn Crofts - media and inquest

    I hadn't realised that Merryn's death occurred so long ago. Perhaps it is appearing in the papers now because the parents have gone public?
  18. Arnie Pye

    Article: ‘You smiled at me so you’re not depressed’: What’s the most patronising thing your doctor has ever said to you about your mental health?

    I suffered from severe depression (for very good reasons) in my teens. I was referred to someone - a psychiatrist who just saw me once - and I was later told by my GP that I had been diagnosed with "normal teenage angst".
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