Does Wood being listed as the first author indicate Wessley' s role as junior or senior?
The outcome may be relative to that.
Eisenberg and Wessley timeline?
was it a simple B12 that was tested , or active B12? You can have loads of B12 swilling around but be incapable of using it
Did any of the subjects have genetic glitches ( MTHFR / MTR/ MTRR etc) which would impact on the efficacy of the treatment? were ferrtin levels also checked ( apologies am...
Yes - this continues to be a huge issue.
There is no understanding that it (GET) simply does not work, and has been shown not to work as PACE reanalysis shows.
Because some may have a " response" to GET, and many with idiopathic chronic fatigue carrying a ME/CFS label may potentially have a...
The 2 year recovery period is also a misnomer and causes issues - Rowe et al and International paediatric primer suggest recovery over 4-6 years possible and not the 80% rate, If you could query this too that would be brilliant - thanks
No long term recovery in FITNET, same as SMC longterm . No doubt, as here, PVFS cohort who recover within 2 years.
My son had PVFS and was floored and missed 18 months school. He did not have PEM. Tired - yes. De conditioned- yes. Excruciating headaches - yes.
PEM - no.
Sleep hygiene was a disaster - it panned out as less overall sleep and worry. Medical staff cannot understand that it will not work for everyone. Most recent appointment saw this rearing its head again with a patient blaming tone that sleep had never been addressed ( loud sigh)
Now Heumber Perry and artistic career taking off
https://artplace.co/artist-works.php?artistId=336411&artist=Gilbert%20BADAF
Perhaps a change in priorities
Perhaps a fixed term contract
Perhaps wages funding ended
Given the travelling , testing and MRI timescales this would only pull in mildly affected. That differences are notable from controls is notable - if only there could be a way of enabling a comparison with moderate and severe we may have a more illuminating dataset.
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