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  1. Arnie Pye

    Traumatic Brain Injury, Bile Acids and Blood Brain Barrier

    A possible consequence of whiplash and/or traumatic brain injury is pituitary and/or hypothalamus damage. Both types of damage have potentially devastating impacts on all sorts of hormones in the body.
  2. Arnie Pye

    Denmark: Open letter to health politicians from Danish ME Association with impressive list of signatures

    The first commenter on @dave30th 's latest blog (the Danish letter with lots of signatories) seems to have a bit of a bee in his bonnet about something, and the author of that comment has been really condescending. Unfortunately he has been cryptic and so his comment is memorable just for the...
  3. Arnie Pye

    Reduced heart rate variability predicts fatigue severity in individuals with CFS/ME. Escorihuela et al. 2019

    Thanks, Trish. I obviously still have much to learn on this subject. :)
  4. Arnie Pye

    Reduced heart rate variability predicts fatigue severity in individuals with CFS/ME. Escorihuela et al. 2019

    Regarding heart rate variability... I discovered info on HRV for the first time very recently and was surprised about it. I had got completely the wrong end of the stick about it in relation to health. I had assumed that a healthy heart would maintain a healthy heart rate more of the time than...
  5. Arnie Pye

    Article: Huge rise in fibromyalgia in the Grimsby area - 28 Dec 2019

    I would assume that in many areas in the UK doctors are diagnosing fibromyalgia because it's a fabulous get-out-of-spending-money card for them. There is no treatment for fibromyalgia that I'm aware of, other than possibly CBT and GET.
  6. Arnie Pye

    Ketogenic diet

    @Dolphin I think keto is easier than any other diet I've ever tried, although I admit my carb and sugar addiction is a stumbling block for me with any kind of diet I try. My biggest issue is still wanting to eat when I'm full! If you want some papers and articles on low carb and/or keto these...
  7. Arnie Pye

    Gabapentinoids Linked to Respiratory Problems in Certain Patients

    My emphasis : I was put on pregabalin some years ago. What I needed was something for pain, but I'm female so my pain couldn't possibly be real, I must be anxious instead. (sarcasm off). I refused to take it after about 2 months because I was sleeping for about 18 hours out of every 24. I...
  8. Arnie Pye

    Functional Neurological Disorders - discussion thread

    @dave30th In your article this sentence takes people to post #7 in the S4ME thread you refer to rather than the beginning of the thread. Was that intentional?
  9. Arnie Pye

    Functional Neurological Disorders - discussion thread

    In gynaecology the preferred diagnosis for those irritating women who won't go away is (or was - I could be out of date) primary dysmenorrhea. When I was diagnosed with this I was just told to go away and get pregnant to cure pain. In hypothyroidism the preferred diagnoses for MUS is Chronic...
  10. Arnie Pye

    When to see a doctor about loose stools?

    I had a false negative on testing, despite being able to see dark red blood in my poo. I had been taking vitamin C.
  11. Arnie Pye

    When to see a doctor about loose stools?

    Fecal occult blood tests can give false positives and false negatives under quite a lot of different circumstances. It is possible to reduce the risk of false positives and false negatives but, strangely, patients aren't very often told about them. The following advice comes from labtestsonline...
  12. Arnie Pye

    Psychiatry Advisor: Addressing depression in ME/CFS, 2018, Cindy Lampner

    I think my main problems with any diagnosis of depression or mental health issues is that a) Normal emotions that make sense within the context of the patient's circumstances and experiences are often pathologised, and made out to be a problem originating with the patient themselves. b) The...
  13. Arnie Pye

    Psychiatry Advisor: Addressing depression in ME/CFS, 2018, Cindy Lampner

    Err... The man knew he was going to die. Isn't that enough? Aren't people allowed to be depressed for any reason now without being told they are mentally ill and should be treated or dismissed, according to the whims of a doctor or therapist? In my opinion depression is a normal (i.e. not sick)...
  14. Arnie Pye

    Psychiatry Advisor: Addressing depression in ME/CFS, 2018, Cindy Lampner

    My "dissatisfaction" with the whole depression issue is that doctors decide that if a person has disease X or illness Y and they have also become depressed since developing disease X or illness Y, that fixing the depression will also cure the disease or illness. This is absolutely ridiculous...
  15. Arnie Pye

    Differentiating Psychosomatic, Somatopsychic, Multisystem Illnesses and Medical Uncertainty, 2019, Bransfield, Friedman

    In post #26 : https://www.s4me.info/threads/differentiating-psychosomatic-somatopsychic-multisystem-illnesses-and-medical-uncertainty-bransfield-friedman-8-oct-2019.11667/page-2#post-226697 I noticed a reference to hyperventilation syndrome. I've suffered with that in the past, perhaps 12 - 15...
  16. Arnie Pye

    BMJ : The need for speed: observational study of physician driving behaviors Dec 2019

    What a strange thing for someone to write a paper about!
  17. Arnie Pye

    Article : Are Regulatory Bodies Prioritising Drug Company Interests Over Public Safety?

    Title : Are Regulatory Bodies Prioritising Drug Company Interests Over Public Safety? Subtitle : The Disturbing Case of the Street Drug Ketamine https://www.madinamerica.com/2019/12/are-regulatory-bodies-prioritising-drug-company-interests-over-public-safety/ Article continues at ...
  18. Arnie Pye

    PEM is associated with greater symptom burden and psychological distress in patients ... with CFS (2019) May, Fletcher, Klimas et al.

    As someone who went through psychotherapy (not CBT or counselling) about 40 years ago I can assure people that it was not in the least supportive. If anything, it made me more depressed than ever. The woman I was seeing wanted me to take the blame for anything and everything I spoke about. The...
  19. Arnie Pye

    Ketogenic diet

    Nice find, thanks for posting.
  20. Arnie Pye

    Silent clock

    I know it sounds odd but my alarm clock is not just an alarm clock and it is really rather big, solid, and heavy. It is a gadget I once used to help me learn to live with tinnitus (a tinnitus relaxer). I can't use it for that any more, I'm too deaf, but I got enough use out of it that my...
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