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  1. mango

    Open Medicine Foundation (OMF)

    New OMF video published on YouTube: "What is ME/CFS?" (1 min 19 sec) (I can't help wondering how many healthies know what orthostatic intolerance and environmental factors mean in this context.)
  2. mango

    News from Scandinavia

    Article in the Swedish journal of neurology about the new NICE guidelines for ME/CFS (published December 2021). NICE nya riktlinjer förändrar synen på ME/CFS https://neurologisktidskrift.se/sjukdomar/48-nice-nya-riktlinjer-forandrar-synen-pa-me-cfs.html Google Translate, English ("NICE new...
  3. mango

    Resources for help getting food during quarantine and safe handling of food

    "If you catch Covid in Japan, the Japanese government will give you a FREE care package for your quarantine! Care packages are only available to those who test positive for covid." (10 minutes)
  4. mango

    News from Scandinavia

    Musikern Jonas långa och svåra väg tillbaka från ME (5:30 min) https://sverigesradio.se/artikel/musikern-jonas-langa-och-svara-vag-tillbaka-fran-me
  5. mango

    News from Scandinavia

    A segment on a Swedish local radio show yesterday. Musician Jonas Widén says had severe ME for 4 years, but has now recovered through positive thinking, mindfulness, meditation, yoga, psychology, activity and an anti-inflammatory diet. He believes that doctors telling ME patients that the...
  6. mango

    Characterization and Intervention Studies in Patients with POTS and IST Associated with PACS (planned study) Ståhlberg et al

    Dysautonomia International: "Join us for a discussion with Dr. Marcus Stahlberg on his new research study that seeks to identify biomarkers and more effective treatment options in POTS, IST, MCAS and Long COVID, February 10th, 2022, 6PM Eastern. Register for free in advance here...
  7. mango

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    A Swedish doctor, who has been suffering from long covid for almost 2 years now, shares her story. She writes about symptoms, treatments and other experiences, the need for more research, the cultural illness hypothesis, and more. (ME is not mentioned.) Läkare med postcovid: Jag saknar den jag...
  8. mango

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    Petter Brodin, a researcher and professor of pediatric immunology at Karolinska in Sweden, who has been involved in biomedical ME studies, is quoted in a (paywalled) Swedish news article about long covid. I'm surprised and very disappointed, I had no idea he held this kind of view :( Forskare...
  9. mango

    Covid-19 vaccines and vaccinations

    Have you read the article I copied the quote from, or any other articles by Ed Yong, maybe listened to one of his interviews? One of the his main points in the article I linked, and other articles he has written previously, is that it's an incorrect oversimplification to frame it as a question...
  10. mango

    Covid-19 vaccines and vaccinations

    Have you read the article? Maybe the quote gives the wrong impression out of context, I'm very sorry if that's the case. It's not as simple as "they could have avoided being so sick", he actually writes about many of the reasons why it's very difficult or even impossible for many people in the...
  11. mango

    Covid-19 vaccines and vaccinations

    It’s a Terrible Idea to Deny Medical Care to Unvaccinated People by Ed Yong https://www.theatlantic.com/health/archive/2022/01/unvaccinated-medical-care-hospitals-omicron/621299/ ME is mentioned:
  12. mango

    BPS attempts at psychologizing Long Covid

    A Swedish parody/gallows humour Twitter account: "The Cultural Clinic", "We are here to help people recover from cultural illnesses" (ie Long covid, ME etc.) https://twitter.com/kulturkliniken :laugh::rofl::(
  13. mango

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    The chairperson of the Swedish Covid Association:
  14. mango

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    Wow, that's a really offensive, problematic and ableistic way of phrasing it :wtf::( Dehumanization is an incredibly dangerous aspect of ableism and many other kinds of oppression.
  15. mango

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    Opinion piece in the journal of the Swedish Medical Association, by ME doctor/researcher (bps) Indre Bileviciute-Ljungar and Kristian Borg, also a rehab specialist. "Everyone affected by post-covid should be offered multimodal specialised rehabilitation. We also call for specific investments in...
  16. mango

    Characterization and Intervention Studies in Patients with POTS and IST Associated with PACS (planned study) Ståhlberg et al

    "Dysautonomia International has been asked to fund a huge study in Sweden led by the famed Karolinska Institute that seeks to explore the biological origins of #POTS, #IST and #LongCOVID. Please help us fund this important research at...
  17. mango

    Characterization and Intervention Studies in Patients with POTS and IST Associated with PACS (planned study) Ståhlberg et al

    Characterization and Intervention Studies in Patients with Postural Orthostatic Tachycardia Syndrome and Inappropriate Sinus Tachycardia Associated with Post-Acute COVID-19 Syndrome Principal Investigator: Dr. Marcus Stahlberg [Ståhlberg], Karolinska University, Sweden "The overall purpose of...
  18. mango

    Advice on mask-wearing to protect against Covid-19

    Only 1 in 10 travellers follow the recommendation to wear masks on public transport during rush hour, according to a recent informal study done by a public service radio channel and news station. Here's how the public health agency is presenting the mask recommendation (issued 8 December), in...
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