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Purpose: Patients with myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) present with a broad spectrum of symptoms, including headache. A simple, yet powerful tool – the pain drawing identifies essential aspects such as pain distribution. The aim with this study was to 1) evaluate the...

"Some studies have raised the possibility that COVID-19 may be causing chronic fatigue syndrome (CFS) in post-acute COVID-19 and thus leading to the observed fatigue complications (Deumer et al., 2021; Murga et al., 2021), but in this case, there was no reduction in actual muscle torque nor a...

Abstract The acute phase of COVID-19 has been well studied, however with increasing post-acute COVID-19 syndrome, much is unknown about its long-term effects. A common symptom in both the acute and post-acute phases has been fatigue, assessed predominantly qualitatively. Here we present a...

Correction: I just realized I mixed up my cortisol result with my ACTH result. My cortisol level is great, it is actually right in the middle of perfect. So at least in my EBV triggered case, we can rule out any cortisol involvement. It is not even a little bit low.

If anyone is interested, my cortisol turned out to be pretty low, but still within normal range. The CDC and Hutan were right. :thumbsup:

Thanks for this @Andy and @Hutan . My cortisol level (and some other endocrine values) will be checked on Monday at Semmelweis University. It was my GP's idea but also the endocrinologist at the University offered me to do these tests, admittedly because that's the only thing he can do about...

Found an interview in English with Michael Stingl, Austrian neurologist who specializes in ME/CFS. Long-Covid treatment: instead of inaction – use existing medication! As a doctor, what do you need to better treat patients with ME/CFS and Long Covid? The big problem with ME/CFS is that we...

Abstract Background ME/CFS is a disorder characterized by recurrent fatigue and intolerance to exertion which manifests as profound post-exertional malaise. Prevalence studies internationally have reported highly variable results due to the 20 + diagnostic criteria. For Australia, the prevalence...

Here in Hungary you couldn't read literally anything about people being out of work long-term due to long covid until now. The media is really not that much interested in long covid here. But now a few days ago I saw an article about our healthcare system being on the brink of collapse due to a...

I just would like to draw some attention to the National Research Action Plan on Long COVID in @ahimsa's post, in case someone didn't click on the link. These are the parts about ME/CFS: From the chapter Summary of Partner Input: The text also mentions ongoing or planned LC studies in...

I've bought the article: most of it was about other, much better defined medical conditions and one paragraph was about ME/CFS. (The Wessely quote was about something unrelated.) It only said that basically due to the association with HLA alleles and certain measurable immunological differences...

I think I've mentioned it a couple of times that it is really rare here that anyone mentions ME/CFS at all in any context (and they don't mean simply chronic fatigue by it). We aren't really actively chased by psychiatrists here so much, we are just simply ignored usually and everyone is...

Axcella previews long Covid registrational trial plans for AXA1125 "Earlier this morning, Axcella announced results for a 41-patient Phase IIa trial of AXA1125 in long Covid (NCT05152849). The trial did not meet its primary endpoint of phosphocreatine (PCr) recovery rate following moderate...

Facebook is not so good at these things, especially if it's not a cookie-cutter type of example. Ads need to be preapproved for example and it is run by an algorithm/AI, people only check it if you disagree and appeal. I agree it would be better to be able to include a short message when you...

Abstract Primary Sjögren’s syndrome (pSS) is an autoimmune disease with frequent neurological involvement. Memory complaints are common, but their precise patterns remain unclear. We wanted to characterize patterns of neurocognitive profiles in pSS patients with cognitive complaints. Only pSS...

Not much, just a couple of long covid studies that got ethical approval recently in Hungary: Google translate: Title: Detection of eye movement disorders in dizzy patients after Covid-19 infection and analysis of the data with artificial intelligence Applicant: MMS One Zrt. Study leader: Dr...

"The nervous and immune systems are tightly intertwined. Deciphering their chatter might help address many brain disorders and diseases." There is a lot more in the article about the brain, neuroimmunology, microglia, sickness behaviour, Alzheimer's, MS, etc, but this is the part that caught my...

Here professor Janszky (a neurologist) keeps hinting at that. The UK Biobank found changes in areas connected to the olfactory cortex in people who had caught covid and so did he and he thinks that the affected areas in the orbitofrontal cortex might play a role in long covid somehow.

This is a joint scientific statement from the European Society of Cardiology. Some excerpts, where ME/CFS is mentioned: Treatment options:

Full title: Long COVID and the cardiovascular system – elucidating causes and cellular mechanisms in order to develop targeted diagnostic and therapeutic strategies: A joint Scientific Statement of the ESC Working Groups on Cellular Biology of the Heart and Myocardial & Pericardial Diseases...