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German has a word for it - Fremdschämen.

I think I can see what they are trying to do there.

That reply kicks ass. I've just become a member. And noticed that they recommend S4ME in their FAQ:

Well there's a woman in this film who describes it: I've spoken to her personally, she was sent home from rehab after a few days after collapsing. The mother of the two daughters in the film says if you have a child with ME, get a lawyer. It's just shit here.

Yes, the sad point is that rehab for depression, which is where ME sufferers end up, includes exercise, and you have to show that you have attempted rehab before being eligible for benefits. So ME sufferers who are unable to work in Germany are in a real catch 22, if they want a disability...

We have a couple of organisations, biggest is Fatigatio which seems fairly ineffective and disgraced themselves recently: https://www.s4me.info/threads/new-german-guideline-for-me-published-today.2202/page-13#post-74207 There is the newer, younger, more motivated Deutsche Gesellschaft für...

The following has come to my attention (thanks @Philipp): http://dip21.bundestag.de/dip21/btd/19/126/1912632.pdf It is a reply to a list of questions which a few German MPs put to the government: The answers basically say that it's not the Government's concern, it's up to the scientists. The...

It's a strategy used by US companies - send everyone on a positive thinking course a few months before you fire them in their droves. That way they've been brainwashed into seeing opportunity in adversity etc and won't cause so much hassle about being fired in their droves. I wonder what the BBC...

BBC Health news - Looking on the bright side 'means you live longer' https://www.bbc.com/news/health-49447685 BBC News (looks like they couldn't even find a journalist to put their name to it this time, it's usually James Gallagher) hosting an advert for the psychosocial agenda and CBT...

The donor believes that her son got her ME with the transplant. I expect it was a complicated situation with various factors in play and I don't know all the details.

He's just an entertainer.

I've mentioned before, I know someone with ME who donated a kidney to her son and now he has ME.

I drink precisely 125 ml red wine every evening, no more, no less. Have done for a few years. Initial results are good. I shall continue my research for the cause.

I only have the information in the article, and those 3 paragraphs I quoted from the end are everything about "the operation that could help him". I don't know who the five patients are or how cured they are according to his research. To me it illustrates how these CCI stories are having a real...

From May 2018.

Just posted on the German forum (thanks @diwa): https://ze.tt/ich-wollte-lieber-krebs-haben-dennis-lebt-mit-dem-chronischen-erschoepfungssyndrom/?fbclid=IwAR3TUiMPmGQXvwfSnv5WdtDS2i4wQta7cXSsW8sKZEr68Sgn62CLy7JFyx4 A good article in the German press about a young man in a terrible situation...

Marineland Cote D'Azure has a fine selection of rockhopper penguins, humbolt penguins and manchot royal: https://www.marineland.fr/en/dans-le-parc/animals/#Birds

I think it's an especially dangerous article for the newly ill to read, they need to be told to rest as much as possible rather than given a pep talk about attitude and getting up every day no matter what.

I think there's an unmentioned elephant in that jungle.

I got my diagnosis from the university hospital in Berlin, I had to wait 9 months for an appointment and do a whole load of exclusionary tests with a local GP before I was even allowed to go. Now that they don't see patients from outside Berlin, I don't know where I'd get a diagnosis from. I...