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  1. Arnie Pye

    Feeling like I'm starving, or continuing to feel hungry despite a full stomach

    I suffer from this too. It is hugely annoying. I am pre-diabetic and I am fairly sure that also means I am insulin resistant. Although I don't understand the connection I'm sure there must be one.
  2. Arnie Pye

    Blog: The Science Bit by Brian Hughes

    I had blood tests done by the NHS at the end of last year. They were the first ones I'd had instigated by my GP surgery in 8 years.
  3. Arnie Pye

    Thyroid Dysfunction and COVID-19: The Emerging Role of Selenium in This Intermingled Relationship, 2022, Gorini et al

    Title : Thyroid Dysfunction and COVID-19: The Emerging Role of Selenium in This Intermingled Relationship Link ...
  4. Arnie Pye

    'Disability as identity' - discussion thread

    If I was healthy and decided to "choose an identity" for myself (something that I think sounds extremely bizarre and frankly very odd) it would be something far more cheerful and positive than being ill or disabled. I could be the woman who wears purple. (Does that count as "an identity"?) Or...
  5. Arnie Pye

    'Disability as identity' - discussion thread

    Sorry, I obviously got the wrong end of the stick somewhere.
  6. Arnie Pye

    Updates on status of ICD-11 and changes to other classification and terminology systems

    I'm not sure if this is important, and I may have got the wrong end of the stick somewhere. :D I was just thinking that people in the UK who have been diagnosed with ME and have had it recorded in their medical records will also (probably) have a history of visits to their doctors before and...
  7. Arnie Pye

    Updates on status of ICD-11 and changes to other classification and terminology systems

    From the quote in post 591... This is welcome for US patients obviously. But just think how much history of the condition in a patient will be missing.
  8. Arnie Pye

    'Disability as identity' - discussion thread

    @Amw66 The link you give is to a private account. Nobody will be able to read it. I don't know anything about Instagram. Can your daughter choose to make a single page public?
  9. Arnie Pye

    'Disability as identity' - discussion thread

    In my personal experience being ill gets me ignored. If my aim was to get attention then choosing to pretend to be ill would be a very poor strategy.
  10. Arnie Pye

    Trudie Chalder, BPS and MUS proponent - presentations, interviews and news

    Why Do Patients With Gout Not Take Allopurinol? I don't know if gout affects men more than women, or if gender is at all relevant. But I bet if they had done a study using female subjects they would have studied anxiety and depression as reasons for non-adherence.
  11. Arnie Pye

    Cognitive Behavioral Therapy: Principles, Science, and Patient Selection in Neurology, 2022, Carson and McWhirter

    Translation and reality = All sick people are mentally ill and just don't think right. We'll give you CBT and that's all you'll get. If you don't like it, tough. You'll just have to suck it up, Sunshine.
  12. Arnie Pye

    Mental health and alcohol use among patients attending a post-COVID-19 follow-up clinic: a cohort study, 2022, Broughan et al.

    I can imagine that this "research" was supported by government and insurance companies so that they can claim anyone with Long Covid is a drunk, secret or otherwise. If it becomes common knowledge then sufferers saying that they have Long Covid are at risk of being accused of being mad drunks.
  13. Arnie Pye

    The micro-clot finding in Long Covid — implications for the possible aetiology of ME/CFS

    I've seen a few references to "platelet hyperactivation" in recent days. What does this actually mean? And would a person with this problem have high levels of platelets?
  14. Arnie Pye

    What is the evidence base for non-infectious precipitating factors?

    I've never received a diagnosis of ME, although I believe I fit the criteria. I have actively avoided a diagnosis. If I have it I am not aware of it being triggered by a virus. In my case I had an intermittent long-term GI bleed. It went on for several years. By 2013 I had been referred to...
  15. Arnie Pye

    Mental health outcomes in patients with a long-term condition: analysis of an IAPT service, 2022, Moss-Morris et al

    That is a description of the people most likely to be disbelieved and gaslighted by doctors. Anyone who has suffered from excruciating pain with no treatment, repeatedly over the course of years, is likely to struggle with their mental health, and depression and anxiety are likely to be common...
  16. Arnie Pye

    The mysterious disease that affects millions of people worldwide | DW Documentary

    There are subtitles. They default to Indonesian but they can be auto-translated to English. The introductory text from Youtube : ME/CFS, or Chronic Fatigue Syndrome, is a severe neuroimmunological disease. Not much is known about the disease, and there is virtually no treatment. However...
  17. Arnie Pye

    3x daily consumption of a novel, premeal shot containing a low dose of whey protein increases time in euglycemia in TYP 2 Diabetes

    I was thinking about 15g protein, three times a day, plus normal meals. It could add up to quite a lot of protein.
  18. Arnie Pye

    3x daily consumption of a novel, premeal shot containing a low dose of whey protein increases time in euglycemia in TYP 2 Diabetes

    I thought high protein diets were implicated in kidney damage and disease. I don't know what constitutes "high protein" though.
  19. Arnie Pye

    Recommendation for standardized medical care for children and adolescents with long COVID [German]. Statement of a ..., 2022, Töpfner et al

    People with Long Covid don't all have the same symptoms. Why should doctors freedom to treat depending on symptoms be taken away? And using questionnaires might save time and resources but they are almost never designed well. Are they suggesting that PEM and ME/CFS are psychiatric problems? I...
  20. Arnie Pye

    Tinnitus treatment and management

    You might find something useful on this site : https://www.tinnitus.org.uk/ And this site for the RNID - Royal National Institute for the Deaf has info on tinnitus : https://rnid.org.uk/ Tinnitus gets discussed on this thread ...
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