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Ah, sorry; I didn’t know what you meant by heading. I am not sure then. As I mentioned, it’s a bit obscure to me what is included in “sensitive” or “not sensitive” diagnoses. Also the advertising guidelines are voluntary. It’s possible Facebook didn’t follow them before, but now decided to...

I don't think it's possible. There's a general philosophy about selling ads that these shouldn't be targeted to "sensitive" information, which mostly includes health items (though certain health stuff is considered ok; I am not sure why, though that link goes into it a bit). This doesn't mean...

https://www.npr.org/sections/goatsandsoda/2018/04/05/597505825/report-ineffective-treatment-often-prescribed-for-lower-back-pain Wherein The Lancet, Cochrane, O.H.S.U., and University of Washington tout C.B.T. and lament how rarely it’s used. K, Medicaid and Medicare aren’t covering...

I have never heard of that. Most studies report the number as being fine, just the function is low. This would have implications for immune problems. Occasionally there will be a report in the literature or from patients that if you count all the markers on the NK cells you get a different mix...

What can solve the lack of funding?

All of this. I don’t even get why personality in illness studies get funded. How does that even get a reasonable score in funding committee? Does the committee lack sense?!

This author/group always tries to differentiate from anxiety and/or depression, I believe because primary care doctors are not trained to diagnose these correctly and make haphazard diagnoses and can’t tell the difference between various different things they don’t know how to diagnose. CDC...

I had problems with spacial orientation right from the beginning. I was always lightheaded and often off balance. I was having random vision problems also (including spells of tunnel vision) and temporarily lost hearing as well, a couple times. Lost spells of time, too. Later told this would...

Here is a place collecting stories about access (or not) to Medicare home health services in the USA. You can choose who they will anonymously (or not anonymously) share your info with (or have them not share it at all), but they do ask for your name, email, phone number, and ZIP code for...

To get rich on benefits, of course. And to have your mom fussing over you all the time and everyone you know heaping you with cards and flowers and hot soup and stuffed animals. How else do we get all the reports and graphs showing sick people in general and people with ME in particular are...

I couldn’t work out why they were saying “fraud”, either. In the Google translate version, that part links to this...

Also, thanks for your work, @Allele . I can’t read French so I appreciate your efforts to get it in more readable English.

Moldy actually seems to be quite a good word there.

That’s fascinating and encouraging, and thank you for sharing your reassuring thoughts. I can’t apply as 1) sick too long 2) too ill to travel 3) too ill to recover from exercise test and 4) even too ill to have so much interaction over several days, but it does sound very hopeful that the...

Maybe they can do a group of longer patients later? If things are that much different, possibly treatments could be quite different. I guess they didn’t want to pack everything into this one study to publish faster (or not so slowly anyway)?

Fwiw, Mayo Clinic is probably best understood as part of the “cabal”. [edit: not that they are necessarily working with the others, but have the same philosophy] Nice talk (well, the 1/3 of the first video I could listen to for now).

Not sure if this is exactly what you are looking for: https://web.archive.org/web/20090902101409/https://www.nice.org.uk/media/001/6F/CFSMEJRJudgementStatement130309.pdf

I’m going to make some specific points about the general topic, but so it’s not missed, I wanted to put the tricky bit at the top. I think this is a useful topic, but I am uncomfortable with the way it was brought up. Sometimes when we have a newsworthy person or someone with a platform, we...

I don’t think the issue is as much treatment for ME as it is treatments for whatever collection of things the patient happens to have. I had doctors refuse to test for and treat my asthma “because CFS causes shortness of breath”. Though, yes, LDN needs more study before it can go in any...

I’ve heard it before. Some people don’t like malaise, as they feel it’s vague or has other meanings. (I don’t mind it much, but that’s probably just my own background as it sounds a lot like a symptom of many types of infectious diseases to me, and I feel like that a lot, especially during...