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I also prioritize normal daily life (which no longer includes shopping, vacuuming, or weeding for me) over "exercise". If I did stuff for the sake of exercise, I wouldn't be able to do more important things.

Firstly, I too am sorry if Hip or anyone else felt offended. I was trying to smooth things over and, as usual, failed. Yesterday I saw nothing in the abstract which indicated this. Perhaps I missed it because they didn't mention any diagnoses. Today I double-checked and I saw "clinically...

maybe I can make this clearer, @Hip . Do you believe that people in general (and patients with other diseases) can have symptoms which might be termed fatigue, anxiety, or depression, without actually having the diseases of ME/CFS, GAD, MDD, or BPD? If so, could those...

Sure. I have no disagreement with that. I don't see that this answers my post, as you seem to be mixing up different terms and models.

It is widespread, but a lot of ableist terms are. I think many people don't think a lot about the derivation of words. One where I stumble is "lame" for "not very good" (ableist again) and I have hopefully solved my use of "tacky" (classist). I am almost there with not using "crazy" for...

I have three things to say about this. 1) This is another case where it's absurd to name diseases for vague, common symptoms. Too easy to get a symptom confused with a disease. 2) The OP was talking about symptoms people might have (or likely, symptoms a survey that might or might not be...

Regarding apparent lower incidence during 20's: I was sick at that time, and no doctor wanted to believe I was ill. It was too early for diseases like Lupus and MS, and too late for child onset diseases. Some of them didn't even write symptom notes in my charts, so it would have been difficult...

Nobody is asking for money given out randomly. NIH needs to make a plan for how to get from here to there. M.E. got left behind decades ago when research standards were different. It's not clear how you get from knowing not much to doing high-quality research, in any kind of reasonable time...

Regarding salaries, I don't think that's a bad thing. People need to eat, and pay rent/mortgage. Some places are really spendy to live in (like D.C., and big cities in CA). It might be nice if we could pay all the volunteers, too, but that's likely not possible for a variety of reasons...

the survey asks people to report diagnoses made by a health professional. http://mefmaction.com/docs/CCHS_Stats_2014.pdf

"There is growing evidence that inflammation plays an important role in the pathogenesis of migraine (2). The calcitonin gene-related peptide (CGRP), and nitric oxide (NO) may participate in immune and inflammatory responses. "Some patients report that certain foods only trigger migraine in...

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC2899772/ Abstract Introduction: It is well-known that specific foods trigger migraine attacks in some patients. We aimed to investigate the effect of diet restriction, based on IgG antibodies against food antigens on the course of migraine attacks in...

I do like and trust my doctor. I have learned to never assume any one person knows everything, so I always check more however I can. Thanks.

My parathyroid, vitamin D, and TSH are all within normal range. My doctor told me to keep taking the same amount of Vitamin D, so at least I know I am doing the right thing for now. It changed from about 3x high to about 2x high. Because it decreased and doesn’t seem to be from any common...

Now I can find the CFS YouTube but not the depression one. I think we can do better than that. Shows only a mild patient.

That’s why it was never on YouTube. ETA: other ad. I forgot that one.

Of course, it could be great to do another. Maybe with a guess of the prevalence, that most are not diagnosed, doctors aren’t educated in it, but we do know a little (problems with making energy in the body, problems with the immune system, and many patients have trouble regulating heart rate...

PANDORA Org funded a public service announcement at one time. Seems like there was a display at Mall of America (Minneapolis, MN) once. I think CDC might have done one once. Seems like that was the one about missing one’s life. There’s a depression one I see sometimes that’s striking similar...

It’s fine for industry to fund research, but there shouldn’t be an appearance (or truth behind any appearance or obfuscation) that industry is influencing the findings or messaging. Probably best to form a separate charitable foundation with no lobbying goals other than promoting charitable causes.

Of all the confusing places to find this information, I found it on another exercise -is-medicine industry, CrossFit. (though they want to add diet to exercise, but still are excluding/ignoring actual medications, the need for continuing medical research, and public health efforts like housing...