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It makes several references to the local Community based ME/CFS service which is provided by OTs. Does anyone know how good this is?

I wonder if drug sensitivites etc are too individual to be able to make a definitive list For me it's Antidepressants Voltarol Metformin Some anesthetics Some B vitamins, particularly multi vits Some antibiotics Waking early morning over a number of days or more Excessive noise or light Not...

The reactions Paul Garner compares to PEM are immediate reactions that can occur in some people. I had terrible sickness with Chemo but going back to the same hospital or even passing the ward doesn't bring on the sickness. It does also not result in sickness that can occur up to 48/72 hours...

It's hard for me to understand the circumstances that would allow for lowering of activities for a whole year and not accidentally challenging it or being forced to challenge it. It would need a situation where all if the persons needs are being met with no visits to a doctor or unexpected...

Miranda looked exhausted on "Strictly" and couldn't even stand up for parts of it. It wasn't convincing of someone who was really recovering from a major illness. As the years go on with no end to 'recovery' and these stumbling attempts to appear normal the disappointment could be very...

Miranda just appeared on 'Strictly come dancing" (UK BBC1 TV program). I'll try and find a link

Catching a virus leads to extra sleep for me. I start to sleep nights (with vivid dreams) and during the afternoon I can nod off as well. The exception would be when I have a cough that keeps me awake. It's not unusual for me to have a flu or cold that goes on to a sinus or chest infection now...

It came from Dr Cheney from memory. He said that once someone started getting normal colds and flus this was an indication that they were recovering from CFS. Stuck in my mind as in the 1980s I was "only" getting my original viral symptoms but not the colds the rest of the family had. I meant...

I would like to see them questioned in the same way Jason Beer KC is examining evidence in the current Post Office Inquiry. He is asking pertinent questions and seems well prepared.

Are there still any HIV/AIDs clinics? Would they be useful to copy in any way?

Yet when I tried this it left me terribly weak and caused an increase in physical symptoms because it was an exertion like any other physical act. By explaining this she shows the wide gulf between herself and people with ME who get PEM regardless of how ' therapeutic' it is supposed to be.

He's also forgetting that if someone believes his theory and keeps pushing they get worse and worse. He doesn't address that the 'mismatch' gets bigger and bigger over time not smaller. There's no solution from him there. In his mind he is thinking it's easy to ignore or just a form of...

Or don't choose for a segment on ME a doctor who is new to the subject and has a pet theory It feels as if ME was replaced by Long Covid

I think anyone watching would be at a loss to understand how and why she died.

The Trust spoke about the E-learning module and informal face to face training. Didn't say who was doing the later or what if would consist of. This would be a worry to me.

Coroner 'I am intending to write a Section 28 report to Trust/Dept Health? plus NICE plus other bodies' Not sure if I heard this right. She expected the Trust to have written a Policy document and she is going to invite them to write one Reply - this would be a flow document of what has been...

Matron for Patient Safety (Hospital role). Never heard if this before They also seem to be putting emphasis on Dr Strain 'having an interest in Chronic Fatigue'. Given his research work how feasible is this really. Did he just step up because he was contacted. They made it sound like a formal...

I was going to comment on the other thread but probably better here. My experience is with 3 viral illnesses (teenager, early 20s and Covid) has made me think of this. Also how similar virus 1 and Covid felt compared to the viral illness that started ME. The difference would be : The big...

I'd be worried about all that heat for anyone who developed POTs or heart issues after Covid.

Cyclizine was the drug that helped me most with nausea from Chemotherapy and I still use it for my normal ME morning nausea now. Covid made my BP all over the place. First my BP went very low. I have had low BP for most of my life. Then it began to go high. It's now a bit more 'normal' but...