Search results

I can't find any background on Dr. Amed. Is he a licensed physician? What's his training? There is another (?) Mend Collective website for a psychotherapy clinic in North Carolina, USA.

Regarding pacing for pain, FM throws that concept out hard on its tush. One or two arm movements can evoke a 10-day bout of increased local and body-wide pain (from a 5/10 baseline level of pain to an intolerable 7-8/10). FM pain generation has its particular rules base which take...

Do most people have the experience, intelligence and empathy combined to comprehend your unique POV, your subjective experience? (Consider the source. If you admire the values of someone, and other qualities, then I think their deep opinion about what you tell them of your situation MIGHT have...

In which areas of life does the concept of "taking responsibility" weigh heavily?

Didn't read it deeply yet. These stood out as confounders to me. Linking FM and inactivity (and obesity and anxiety, depression) are of questionable relevance. That is because FM causes these, and does not necessarily precede onset of the FM condition. I don't see controls for this, as the...

There is also impairment of the descending pathway of pain modulation in FM that contributes to pain load. https://pubmed.ncbi.nlm.nih.gov/40819274/

I have severe FM pain (x30 yrs and defined by # of body regions inputting pain signals) and managed to get my doc to prescribe low dose (5mg/day) methadone which I took for 20 years. After I tapered off methadone in 2021, I realized it was causing some hyperalgesia. I now use tizanidine and if...

Possible confounding factors: Participants were aged 18-90. The elderly age group may skew to more OA of the joints in the hand. FM patients on average make more visits to MDs because of their FM symptoms (and getting a diagnosis, ruling out other disease, trips to specialists for that) and...

The author Valdus Macionis is a plastic surgeon in Vilnius, Lithuania His Google Scholar publications include several articles that underpin his feelings against the idea of nociceptive pain. His surgeries involve nerves and nerve grafts. Whether or not there is nerve compression that causes...

I interpret nearly all TCM studies (traditional Chinese medicine) as primarily propaganda, if the reserach is done in China. The reason I think so is because the government of China has stated that they promote TCM for popular and nationalist reasons. This study comes from Chengdu University...

When I told my medical-journalist father in 1996 that I was diagnosed with FM (I waited several months before telling him), his told me that my FM was psychogenic per a NYTimes article quoting a surgeon**-author who said it was. **Memo to self: surgeons aren't neurologists or rheumatologists...

I have primarily been diagnosed with FM in 1996, but also CFS. Maybe the following will be of some value: I turn 75 this year and my FM symptoms (pain, exhaustion, cognitive dysfunction) are always "worse" when I contemplate how to describe it for my annual MD visit. But yes, I do think I can...

TWIV episode at a Harvard virology department retreat. Discussion of Epstein-Barr at 49 minutes by a researcher.

Openness as a personality trait---I think openness in a psychotherapist is a professional stance (in their training, therefore they are socialized in the profession to be open) to prod clients to verbalize their fears and troubling feelings. Openness can be masking tactic, hiding one's true...

At the end of the Paul Krugman podcast is the assertion that scientists need to be spokespersons in the public eye--get out there and talk about what are the facts, why they matter and what is not true or effective, and what we don't know, disseminate information to the public better, despite...

Outstanding podcast from vaccinologist Peter Hotez, climate scientist Michael Mann and Paul Krugman (nobel prize winning economist, whose substack is this podcast's origin). They trace the origins of the current decline and fall of science in the US...

Here's an article about sleep problems and the microbiome with quite a few "maybe's, "coulds" and "perhapses.". I want it to be relevant to sleep problems in ME. https://www.bbc.com/future/article/20250905-how-your-microbiome-affects-your-sleep and of course, butyrate is mentioned.

I think I'll adopt that phrase: "working on instinct" when I feel the need. Per the above report: (my bolding) "....alpha-gamma-herpesviruses, in folks with complex chronic illnesses such as #fibromyalgia. Working on instinct, Dr Pridgen trialed this protocol in #LongCOVID and saw a...

I use alcohol as a drug to dampen brain activity. I use measure out less than an ounce (one ounce=a "drink") of vodka into an iced diet lemon lime soda and add fresh lime juice. I drink this usually before 3pm, so it doesn't interfere with sleep (awakenings) as much. It is also feels justified...

Well, that's useful. FM pain levels high this month and I was just going to spend some money on a trial of CBD:THC 30:1 tincture. So now I have to read the clinical trial data (re any FM patients) on suzetrigene (Nav1.8) trade name Journax might work for me....that's expensive as well. For...