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Here is a draft for the first factsheet in Norwegian, happy for feedback :) Introduksjon til ME/CFS Hovedpunkter ME/CFS (myalgisk encefalomyelitt/kronisk utmattelsessyndrom) er en sykdom som har betydelig innvirkning på folks liv, og er vanligvis langvarig. Sykdommen rammer omtrent 1/250 av...

Again like ME/CFS some say it's possible and some don't. Others see it as a "dynamic" state one can transition in and out of. And as rvallee mentions, there is "frailty without aging" that some don't use because frailty is seen as "extreme aging" (a bit like how ME/CFS is at the extreme end of a...

In this case, it’s a catch-all phrase that can include having an infection, a cognitive challenge or having to deal with something emotional (hence how the psychosocial tries to be relevant). There is a figure in one of the WHO reports on frailty showing how someone frail, when exposed to a...

I was thinking about frailty in relation to pwME earlier this week! A bit like us it is not an agreed about definition on frailty, but while there is «biopsychosocial» ideas it is generally seen as a physical decline in ability to deal with external stressors.

We see the overlap in Norway too, with the same people saying the same things about pwME and trans.

You're right on the mark there.

I meant believing in the treatment is one such thing that can make you guess wrong. When you look at the data you might guess the patients that does "well" are in the treatment group and those that do "poor" in the control.

Wanting to believe in the treatment?

Another study where the intervention (health promotion, ie. helping people set goals, be physically active, socialize etc.) didn't really do much but is still promoted in the conclusion. Somewhat worrying was that the intervention is done by volunteers with little to no education in health...

Full Title Clinical and cost-effectiveness of a home-based health promotion intervention for older people with mild frailty in England: a multicentre, parallel-group, randomised controlled trial Background Health promotion for people with mild frailty has the potential to improve health...

A municipality in Norway (Tromsø) is in trouble after it was found out the evidence base for a political debate on closing down schools was made with AI - including made up quotes and books by a professor at the local university.

They also did not rate the quality of the studies. That it is noted there are no studies on hypnosis feels like making ground for hypnosis research, some of the Oslo Fatigue Consortium are into that. Sigh.

The litterature search by FHI (National Institute of Public Health) has now been published: Hva vet vi om pasienters erfaringer med behandling av langvarig utmattelse av uklar årsak? Google translate is not working for me. But hopefully it can work in-browser for those of you that want to read...

That's how I would put it too.

Though if the conflicts come from various forms of abuse, being asked to take the abusers feelings into considerations could easily cause retraumatizing. In those lines one could easily find oneself at fault for the problems although that might not be the case.

In some critiques of studies on here the lack of reporting of bias is sometimes mentioned. I'm not sure if it is necessarily because researchers are unaware of them, but that they are not mentioned because they are believed to be well-known. Then there are problems such as character limits of...

I'm happy this was published. We need methodology papers :thumbup: Though calling ME/CFS "rare and elusive" is not quite the words I'd have chosen, though it seems to be a phrase used in the field so maybe it's just that I'm not familiar with it.

The infection could be what pushes the person into full blown ME/CFS. Well, I had been improving enough to start university. My second year I got an infection and became bedridden for two weeks and didn't really improve back to where I was. It was around this time I got my diagnosis. With...

With the median time being five years, so there are some pulling up that average number (me being one of them, having vague mild symptoms at the start and not diagnosed for years). Reporting an instant onset doesn't mean that the level of functioning was low enough to get disabilities at that...

From last year, but while looking for something else I came across this opinion piece written by a psychologist who got LC, and at the time of writing she is 8 months post-infection and 80% back at work. Talking about her own (and the rest of healthcare's) negative preconceptions of "fatiguing...