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I'll certainly be doing that thanks because i a new smartphone user too. I was hoping to use the HR monitor though... is that part of it all or can i have it to do that & not the rest? ETA: sorry this is hugely off topic sorry mods

lol yes me too. Except now it's usually 'cant sit up & chew gum at same time!

:eek: Someone is about to give me an old apple watch, because i cant bear an alert thingy but keep falling down so i wanted to be able to make calls from it But i useless with tech! will have to make sure it doesnt record inaccurate stuff i dont want!

doesnt that happen after PEM tiggered by a physical overdo as well though? it does for me

it started making me feel stoned immediately, even at 25mg for pregabalin, & 100 for gabapentin (which is the smallest dose - gabapentin doses are huge in comparison! 3600 is max daily dose for pain)

Yes i can relate to this. Although the gain for me only comes if i also have emotionally induced stress hormone surge like anger or fear/anxiety - which always makes me feel so much sharper.

My PEM from cognitive activity used to be identical as from physical. However I think things have changed a bit more recently, with the advent of massive awful headaches at back of my skull with more severe light senstivity, after too much cognitive, that arent present after physical. Thats a...

:laugh: you've coined a phrase there!

This is exactly, exactly my experience, I am sick of attempting to explain it to carers who cannot grasp it. MAssive over exert on monday, looks fine tuesday wed, better than usual even & why were you awake at5am after such a 'tiring' day. then when they expect me to be recovering, they arrive...

I'm scannin the thread for bits i understand, which is currently approx 1 sentence in 500 :D. However of the bits that did catch my eye, just wanted to chip these in, JIC you likely aware of this but Cognitive inprovment with PRegablin/Gabapentin is entirely contrary to some peoples...

while also being disgusted with their clumsiness

@Chestnut tree that looks good for her to be doing... but its not an anonymous survey if you have to sign in to google to access it?? I wouldnt want to do anything where my responses could be traced back to me, no matter how much she intends for it to be safe, anything to do with the DWP, isnt...

My Builder:rofl::rofl::rofl:

Don’t know why there’s a need for any more professionals’ “views” on our experience you may as well say we need more of the views of men who have no uterus, on how best to handle menstrual cramps

:rofl: new?? might be new to you but they've been rammed down our throats for years! new ideas, what tosh. oh the irony :( You mean you were present in their lives while they recovered. Not the same thing.

I am waaay too ill to read the thread & wouldnt understand most of it if I did. I'm not really taking it in it's all just a blur in the main. But there were moments & certain snippets that caught my eye that suggest to me that perhaps we might be near to some kind of breakthrough??? But i keep...

So do you think there is anything that I could be doing right now, to help my sensory intolerance? When well rested I can cope with a certain amount but then as i begin to "tire" (hate using that word but among ourselves we know what we mean) everything gets louder & brighter and more painful...

That is exactly, precisely, it. And, in addition, as the reply linked to by SNT above explains very nicesly (thank you Dr Chesterton), "the beliefs that others held about me and my illness: that I could get better, if only I reframed my own thoughts, or did more exercise, or exercised in a...

Indeed I felt sick when i read that the BMJ has basically taught every Dr that I go to, from gynaecology to dermatology, not to mention my GP & the practice nurses.... That I do NOT need a quiet room to lie down in, because that is harmful to my health - so they need to refuse all the...

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