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  1. Andy

    USA: NIH National Institutes of Health news - latest ME/CFS webinar 14 Jan 2025

    As I just posted in response to your other post.
  2. Andy

    Genetic Risk Factors for Severe and Fatigue Dominant Long COVID and Commonalities with ME/CFS Identified by Combinatorial Analysis, 2023, Taylor et al

    Not publicly they won't. In the public webinar Chris plans to talk about the study in general and provide an overview of our published analysis of questionnaire answers. In the private session after the webinar has finished, he will talk in more detail, which will include any initial results...
  3. Andy

    Neuroinflammation in post-acute sequelae of COVID-19 (PASC) as assessed by [11C]PBR28 PET correlates with vascular disease measures, 2023, VanElzakker

    Published version linked in this later post here Preprint Abstract The COVID-19 pandemic caused by SARS-CoV-2 has triggered a consequential public health crisis of post-acute sequelae of COVID-19 (PASC), sometimes referred to as long COVID. The mechanisms of the heterogeneous persistent...
  4. Andy

    Closed UK: DecodeME updates, was recruitment thread.

    Thank you for highlighting this. Watching the video it seems that Chris unfortunately did say hyperthyroidism, so the transcript is correct in that sense, but obviously what he should have said is, as you point out, hypothyroidism - I've let the team know and asked them to amend the transcript...
  5. Andy

    Effectiveness of psychosomatic therapy for patients with persistent somatic symptoms: Results from the CORPUS... 2023 Wortman et al

    "The psychosomatic therapy was administered by psychosomatic therapists with special interest in PSS, registered with the Dutch Association of Exercise Therapists [14] and the Dutch Association for Psychosomatics in Physical Therapy [13], respectively. It includes the following elements...
  6. Andy

    Effectiveness of psychosomatic therapy for patients with persistent somatic symptoms: Results from the CORPUS... 2023 Wortman et al

    From the Discussion section. "Due to our selection procedure we may have included patients who did not always expect a psychosomatic approach. Some patients may need more explicit attention to a shared biopsychosocial disease model, more focus on understanding and acceptance of the symptoms as...
  7. Andy

    Effectiveness of psychosomatic therapy for patients with persistent somatic symptoms: Results from the CORPUS... 2023 Wortman et al

    "The term Persistent Somatic Symptoms (PSS) refers to a heterogeneous group of physical symptoms such as chronic widespread pain, headache, dizziness, fibromyalgia, chronic fatigue and irritable bowel syndrome that cannot be directly attributed to detectable underlying diseases or an organic...
  8. Andy

    Effectiveness of psychosomatic therapy for patients with persistent somatic symptoms: Results from the CORPUS... 2023 Wortman et al

    Full title: Effectiveness of psychosomatic therapy for patients with persistent somatic symptoms: Results from the CORPUS randomised controlled trial in primary care Highlights We investigated the effectiveness of psychosomatic therapy for PSS. No improvement was established in patient's...
  9. Andy

    The effects of a structured communication tool in patients with medically unexplained physical symptoms: a cluster randomized trial 2023 Abrahamsen

    From Methods. Participants in the study were selected by their GP if they were aged 18 years or older and had experienced one or more of 23 physical complaints listed in the "Robbins list" for at least three months14 (Table 1). This selection procedure aligns with previous research.3...
  10. Andy

    The effects of a structured communication tool in patients with medically unexplained physical symptoms: a cluster randomized trial 2023 Abrahamsen

    Background Medically Unexplained Physical Symptoms (MUPS) are prevalent among primary care patients and frequently lead to diminished quality of life, increased healthcare costs, and decreased work participation. We aimed to examine the effects of a work-focused structured communication tool...
  11. Andy

    Effect of the addition of a mental health specialist for evaluation of undiagnosed patients in centres for rare diseases (ZSE-DUO)... 2023 Hebestreit

    Full title: Effect of the addition of a mental health specialist for evaluation of undiagnosed patients in centres for rare diseases (ZSE-DUO): a prospective, controlled trial with a two-phase cohort design Background People with complex symptomatology but unclear diagnosis presenting to a...
  12. Andy

    Medicalization and the search for legitimacy in people diagnosed with non-epileptic attack disorder 2023 Peacock et al

    Full title: ‘I just need to know what they are and if you can help me’: Medicalization and the search for legitimacy in people diagnosed with non-epileptic attack disorder Highlights In-depth qualitative interviews with people with functional seizures and identify the social challenges of...
  13. Andy

    Petition: S4ME 2023 - Cochrane: Withdraw the harmful 2019 Exercise therapy for CFS review

    8,869 signatures at time of posting. https://www.change.org/p/cochrane-withdraw-the-harmful-2019-exercise-therapy-for-cfs-review
  14. Andy

    Petition: S4ME 2023 - Cochrane: Withdraw the harmful 2019 Exercise therapy for CFS review

    It seems to me that if the Independent Advisory Group are now self-managing then it is completely within their power to put out a statement that might go someway towards reassuring the community. Or if they feel that is not possible to do as a group then those members who are part of the...
  15. Andy

    USA: NIH National Institutes of Health news - latest ME/CFS webinar 14 Jan 2025

    Email: News from NIH: Registration now open for upcoming ME/CFS Research Roadmap webinars Registration is now open for upcoming ME/CFS Research Roadmap webinars: Metabolism—October 26, 2023, 11:00AM ET Genomics/Genetic Susceptibilities—November 1, 2023, 11:00AM ET Chronic...
  16. Andy

    Opinion Creating a “Brain-Mind-Body Interface Disorders” Diagnostic Category Across Specialties 2023 Maggio, Adams and Perez

    The COVID-19 pandemic taught us many lessons, including the interconnection between physical and mental health. This observation is not new, however; the intersection of physical and mental health is discussed in early medical writings. At the origins of modern-day psychiatry and neurology...
  17. Andy

    Review The Utility of Methylphenidate for Fatigue in Long-Term Neurological Conditions: A Meta-analytical Review 2023 Hagan and Kumar

    Abstract Objective: Fatigue is a chronic and debilitating symptom of many long-term neurological conditions (LTNCs). Although methylphenidate provides some promise in alleviating fatigue in other clinical groups, little work has explored its potential utility within LTNCs. The current...
  18. Andy

    The impact of post-stroke fatigue on work and other everyday life activities for the working age population – a registry-based cohort 2023 Vollertsen

    Introduction Life after stroke is a comprehensive area that involves engagement in meaningful everyday activities, including work, and can be adversely affected by post-stroke fatigue. This study investigates post-stroke fatigue, its development over time, and its impact on return to work and...
  19. Andy

    Exploring the complexities of illness identity and symptom management in seeking a diagnostic label of (POTS) 2023 Iris Knoop, Moss-Morris et al

    Well, inspired by the typical quality of logical thought from Hans, as they have the same surname then I think that they must be. If only Hans had stayed in the family chocolate business, instead of dedicating his life to making up stuff about chronically ill people, he could have actually...
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