Search results

Paywall, https://link.springer.com/article/10.1007/s00115-023-01516-1 Unhelpfully no preview is available at all. But given the title, the German authors and text, and the references given, I suspect that it is some sort of defence of BPS ideology in relation to ME/CFS. Perhaps somebody who...

Indeed, that will be made clear when we publish our final results. We are not making it clear before in order to reduce the risk of biasing recruitment. In short, nothing. The data analysis plan, which can be read here for anybody else interested, always needed to be able to accomodate...

I don't have the exact figure but it is, relatively, a very small number (<1k) compared to the pre-Covid.

Full title: The Hindi Version of International Consensus Criteria: A Cross-cultural Adaptation and Validation Study for Myalgic Encephalomyelitis in Post-COVID Patients Abstract Context: Fatigue is the most prominent feature of long COVID. With the increasing burden of long COVID cases...

Approx 7k who have already taken part and weren't previously asked for a sample will now receive an invite; the ameneded criteria has been live on our system for a short while so all recent new participants will have been assessed with it.

I am personally very aware and take them very seriously. I can also confirm that, despite claims that I have seen elsewhere, DecodeME are not in any formal collaboration or partnership with ME/CFS Lines.

Twitter and Facebook posts on this update. Facebook: https://www.facebook.com/decodeMEstudy/posts/pfbid0F64qteutoCGxTj3CHxypTi8ux5i4hRfJEvvxcqs44tqo2S6XxgXnCt31WqDcXbxol

Published papers thread for w/c 19th June Facebook: https://www.facebook.com/sci4me/posts/pfbid0JVX2ZqqKT9NUru6nJeCffAntpJreKCt28B73WTqvEzfgZNUU5RgnBDTSXd2wvuVZl Mastodon: https://med-mastodon.com/@s4me/110609439577082109

New blog Inviting More Participants to Donate DNA DecodeME can now invite even more people to donate their DNA. This is because we will apply an additional scientific method to ensure that our genetic findings are due to ME/CFS and not to common co-occurring conditions. This new...

"The Lancet's careless discussion of psychosomatic conditions mirrors disrespectful language that can be encountered in medical, surgical, and even psychiatric clinics throughout the UK. The Editors could make amends by using their writing skills to try to improve doctor–patient communication...

DecodeME Twitter post highlighting the documentary.

"My name is Thomas McCann and I am a recent Graduate of the Edinburgh Napier University BA Journalism Course. This documentary was created by me and submitted as my Major Project. ME is a chronic illness which has been under researched and poorly understood for decades, and those who suffer...

Full title: Discordance between Adolescents and Parents in Functional Somatic Symptom Reports: Sex Differences and Future Symptom Prevalence Functional somatic symptoms, i.e., physical complaints that cannot be sufficiently explained by an objectifiable biomedical abnormality, become...

News in Brief posts for w/c 19th June Facebook: https://www.facebook.com/sci4me/posts/pfbid02YECrf5j4UWtatYYbPAnVtUu9UMZUDxfRCjoQYsXwjNWw4xFXQv1zMCVR5v5XmVTjl Mastodon: https://med-mastodon.com/@s4me/110604872089503280

Online version, https://www.mdpi.com/1422-0067/24/13/10582 Fukuda criteria.

The Medical Review of Liege, "a tool for continuous medical training being addressed to students, general practitioners, and specialists", May-June edition is on functional disorders, https://rmlg.uliege.be/

Fibromyalgia is a complex chronic pain condition characterized by widespread pain, fatigue, cognitive dysfunction, and sleep disturbances. People with fibromyalgia can experience both autonomic and somatic disturbances, cognitive and mental health symptoms, and hypersensitivity to external...

"Studies showed an excess annual cost associated with FND (range $4,964 to $86,722 2021 USD)" Only a small variation then.....

Introduction Functional Neurological Disorder (FND) represents genuine involuntary neurological symptoms and signs including seizures, weakness and sensory disturbance which have characteristic clinical features, and represent a problem of voluntary control and perception despite normal basic...

Full title: Poor health-related quality of life in postural orthostatic tachycardia syndrome in comparison with a sex- and age-matched normative population Purpose The effect of postural orthostatic tachycardia syndrome (POTS) on health-related quality of life (HrQoL) remains poorly studied...