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Advancing understanding of chronic illness following infection and identifying novel biomarkers of Lyme disease and Long COVID The MIT MAESTRO study leverages leading edge technology through collaborations with academic and industry partners. The goal of our study is to investigate why some...

Vestibular involvement in cognition should also be studied. This is an issue in my case.

I can understand that. I don't have many symptoms so it's easier for me to identify a change in fatigue state and know when it's time not to go over my baseline. It took many years of trial and error figuring this out though

I agree. Our experiences with PEM will differ. During the first several years of illness I would get a sore throat after over exerting, but that was during the PVFS phase. Symptoms change over time, and for those of us who have been ill for decades it's easily distinguishable.

I was tested for many viruses via PCR/DNA/RNA but nothing ever showed up, even when I felt 'viral' or bad. The testing was done about one year after that EBV and HHV6 reactivated episode. It's difficult to test for I think unless you're very symptomatic? Dunno I hope they find something...

I had very sudden symptoms one morning but not bad enough to stay home. I was feeling very well during that time period, about 90% improved in 2001. I had a doctors appt that day so went to see my doc who asked how I was doing and I said 'great', when I really wasn't sure why I feeling so...

These are the 2 most comfortable positions when I'm upright. I think it pumps blood back up? I can't sit with my legs dangling for very long, it's very uncomfortable.

@duncan I'm not sure what you're asking. I was explaining to Eddie that over exertion PVFS in my case feels very different from delayed M.E PEM from going over my energy limits. If I have a viral infection over exertion I would experience immediate PEM but that does not include the same...

My reading measurements would differ between morning and evening. Might indicate something else is going on.

Lessons In Persistence https://www.science.org/content/article/long-covid-trials-aim-clear-lingering-virus-help-patients-need Not sure where to post this article.

Full Title: Orthostasis Is Impaired Due to Fatiguing Intensive Acute Concentric Exercise Succeeded by Isometric Weight-Loaded Wall-Sit in Delayed-Onset Muscle Soreness: A Pilot Study, 2023, Balázs Sonkodi et al Abstract The aim of the study was to investigate any indication of diminished...

Abstract Background Orthostatic syncope (transient loss of consciousness when standing—fainting) is common and negatively impacts quality of life. Many patients with syncope report experiencing fatigue, sometimes with “brain fog”, which may further impact their quality of life, but the incidence...

Materials and Methods Experimental Protocol We recruited PD patients from the Movement Disorders Clinic at Sanford Health in Fargo, ND. All PD patients met at least two of the four diagnostic criteria for PD: bradykinesia, tremor, rigidity, and postural instability, and were DOPA responders. We...

Dietary supplement for mood symptoms in early postpartum: a double-blind randomized placebo controlled trial https://www.thelancet.com/journals/eclinm/article/PIIS2589-5370(24)00172-X/fulltext

Canadian researchers create natural supplement to combat postpartum blues https://globalnews.ca/news/10413933/postpartum-blues-natural-supplement-blues-away-canada/ Watched the interview with the researcher this morning. The researchers are looking into creating a supplement for...

Yes, but I couldn't stand for more than 2 minutes. I rested for 3 1/2 weeks and felt I had recovered and gone back to my baseline after one month so went out for a very nice 50 minute walk only to get up the next morning unable to stand up on my legs again. I had to crawl around and eat out...

I contracted COVID in 2022 and it didn't resemble M.E PEM at all, not even close. No cognitive issues or other symptoms of delayed ME PEM. But, it was similar to PVFS over exertion I experienced during sudden viral onset in 1992. It affected legs muscles only, the only muscles I used for...

The new diagnostic system combines Schmidt’s area of expertise in optofluidics, which is the control of tiny amounts of fluids with beams of light, with a nanopore for counting single nucleic acids to read genetic material. The tool was designed to test for Zika and SARS-CoV-2, which have been...

Although not without limitations, our data provide strong evidence that SARS-CoV-2, in some form or location, persists for up to 14 months following acute SARS-CoV-2 infection. This persistence is influenced by the events of acute infection. These findings motivate an urgent research agenda...

Yes :emoji_hand_splayed: and these are the pwME who eventually reach the point of no return when they might have had a small chance of returning to work part-time or having a small social life early in the illness if they paced properly and didn't exercise. I continued to run for 2 yrs, but...