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  1. M

    #OMFScienceWednesday - collection of the posts

    Hopefully they will get their tools properly calibrated soon, especially now that they have the cool $5M donation from the pineapple fund. :emoji_pineapple: :emoji_microscope:
  2. M

    Action for ME has joined S4ME

    Agree, just like Emily Taylor did. Emily used her real name and used the Solve logo for her Avatar. I feel this is a fair and resonable request for an organization that wants to join us. If the organization has nothing to hide, then I don’t see why this is a big ask.
  3. M

    How many hours of sleep a night do you need? - Now with Poll

    I don’t know how it works for sleep. I take it to gain more energy, in the morning, so I can get more things done during the day. If I get more things done, then I feel better about myself, which allows me to feel more relaxed at night. It’s a possibility that it may work differently for some...
  4. M

    How many hours of sleep a night do you need? - Now with Poll

    I take NAC also, Jarrow (not the extended release). I don’t respond well to Melatonin, so don’t take it.
  5. M

    Register now for ME/CFS Advocacy Day on Capitol Hill!

    Thanks for sharing the link! That’s an impressive list of face-to-face meetings from 2017!!! I hope this inspires other countries to step-up, because so far it appears that the US is leading the globe in ME advocacy. Washington, DC face-to-face meetings Congressman Charles Dent (R-PA-15)...
  6. M

    Register now for ME/CFS Advocacy Day on Capitol Hill!

    No worries. I frequently get lost in the UK stuff.
  7. M

    Register now for ME/CFS Advocacy Day on Capitol Hill!

    Looks inticing, @Emily Taylor, especially if #MEAction puts on a great DC protest on the 12th!
  8. M

    Register now for ME/CFS Advocacy Day on Capitol Hill!

    As I recall, the event went well last year.
  9. M

    Neurolinguistic programming (NLP)

    Yes, I agree. Thank you for speaking up :hug:
  10. M

    My letter to the CDC concerning Kaiser Permanente still recommending GET

    Typo is fixed, thanks. @Luther Blissett...such nasty thoughts... now don’t tempt me to use the paddle :emoji_blush: (again)
  11. M

    My letter to the CDC concerning Kaiser Permanente still recommending GET

    A busy and highly respected specialist (not ME) printed out the article for me, and told me he suspected I had ME. Because of the article, he told me to start an exercise program and keep incrementally increasing the duration and intensity. He is a sharp doctor, and both he and I came to the...
  12. M

    Viruses and ME, Prior Statements by Davis & Naviaux

    Have we learned anything about viruses and ME since Ron & Bob made these statements back in September of 2016? Is there a relationship between a virus and ME? I am curious to know your thoughts. https://www.omf.ngo/2016/09/09/viruses-and-cfs-statement-by-ron-davis-and-bob-naviaux/ Ron Davis...
  13. M

    Neurolinguistic programming (NLP)

    I found NLP to be very helpful, when I was young and healthy, in removing emotional blocks that got in the way of achieving a goal I highly desired. I view NLP as one tool in a large tool box. Just like we wouldn’t use a hammer, when simply a screwdriver is required. Why should we criticize a...
  14. M

    My letter to the CDC concerning Kaiser Permanente still recommending GET

    Fair enough, but I am referring to Dr Kamoroff. Here is a quote from an editorial Kamoroff authored in 2015 (my bolding), from the Annals of Internal Medicine. http://annals.org/aim/fullarticle/2322808/myalgic-encephalomyelitis-chronic-fatigue-syndrome-real-illness “Are There Proven...
  15. M

    My letter to the CDC concerning Kaiser Permanente still recommending GET

    Excellent detective work! It’s an eye opener, but now I better understand where Anthony Komaroff is coming from. Makes me wonder, how many other people have thrown us under the bus?
  16. M

    My letter to the CDC concerning Kaiser Permanente still recommending GET

    Or just maybe a few of these “coronal-loops” are helping :laugh:
  17. M

    Gary Burgess talking ME/CFS BBC Radio 5 live Wed 1pm

    Yes, I agree!!! If anger leads to constructive action, then lets all be angry. To add to this train of thought... For the handful of ME advocates fighting for us, especially ones with ME, let’s agree to avoid directing our anger at them. I feel it’s a better use of our energy to educate and...
  18. M

    Association of chronic fatigue syndrome with premature telomere attrition (2018) Unger et al

    Me too. On good days, I look about 20 years younger than my birth age. Maybe it’s because I mostly stay out of the sun?
  19. M

    Higher prevalence of ‘low T3 syndrome’ in patients with chronic fatigue syndrome: A case-control study (2018) Ruiz-Núñez et al.

    I don’t have answers ATM, but I feel this topic of discussion needs to be addressed, possibly after the MillionsMissing May 12 protests. I think that advocacy for May needs to be our top priority now.
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