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Hepcidin https://en.wikipedia.org/wiki/Hepcidin

Bullying is awful and horrible!! I am so sorry about your friend.

I am glad that you and your GP realized that you have your own “normal”. Now I have more faith that there are people whom we are supposed to trust in medicine, that actually understand the basic concepts of health and wellness. Just curious, do you have a HFE gene mutation?

I was successfully treated for hypothyroidism for over 10 years, with T3 and T4. I had unlimited energy! I started with T3, but I had ups and downs. Too much energy when I took it, and too little a few hours later. So I added T4 to the mix, which smoothed out my energy level throughout the day...

Way too obvious, except for the auto and health insurance industries whose quarterly profits are at stake. They rely on the misled medical industry to tell the patient that it’s “all in their head”. Which it’s true, it is “all in their head”, but the lazy, poorly trained, overscheduled, tightly...

Now I am waiting for the PwME band “Team Critics” to break up. After reading Brian’s posts, it’s clear to me that the NIH is doing way more than I realized. I withdraw all of my previous critical remarks, about the NIH study, because my US tax dollars are helping to fund the most comprehensive...

Hypothyroidism is not the same thing as ME. Hypothyroidism does not cause PEM. Lots of illnesses/diseases cause severe fatigue. I am hypothyroid, take T3/T4, and still have ME and PEM. It’s nice to see more research on hypothyroidism, because PCPs, endocrinologists, and MDs tend to rely solely...

Bald is Beautiful!! Bald is Sexy!!

Respectfully, maybe have a chat with Bill Gates about how our culture prioritizes baldness? https://www.independent.co.uk/news/world/americas/bill-gates-why-do-we-care-more-about-baldness-than-malaria-8536988.html Clinical Trials (recruiting/enrolling/active) approximately 3 times more active...

I have worn custom made orthotics for many years, cast by my podiatrist. Prior to orthotics, I had plantar fasciitis, fallen arches, and frequent toe jams. My experience with ME, is I suffer from lactic acid build up. So I get frequent chair massages, including my feet, which allow me to be...

It’s looks like the meeting is using EST, so 4 hours from now! Bump!

The ME community does not have a shortage of critics! But we do have a shortage of ME advocates who are public figures, and despite being ill, do their best to make positive changes! I feel your posts are seeming more “off topic” to me, and deserve their own thread.

http://www.stonybrook.edu/ I love their motto! EMPOWERING UNDERFUNDED OVERACHIEVERS :emoji_microscope::emoji_microscope::emoji_microscope::emoji_microscope: I am wondering if we could modify this for ME... ME Advocacy! Empowering our Underfunded Scientific Overachievers! Or S4ME Advocacy...

Thanks for posting! The article reminded me of a wider population base: “The app also helps people who are temporarily disabled with an injury or people who are pushing strollers and can’t go up stairs easily.” And also I feel that people who walk their dog, where the dog can not manage...

Looks like a great opportunity for anyone who feels they have something positive to contribute.

Since Dr Walitt’s contact information was listed, do you feel that asking him your questions directly may be the best approach? Edited to add contact info: Brian Walitt, lead clinical investigator: Building 10, Room 2-1341 10 Center Drive Bethesda, MD 20892 301-827-0117 brian.walitt@nih.gov

Yes, I agree, it’s very much a process. If I may add, I feel it’s about celebrating one victory at a time, while staying focused on the long term goal. It’s too easy to get distracted, and invest our limited energy into dead-end debates. We must remain vigilant, and stay the course, if we want...

Since this is a forum for PwME, and I am a member, and I have ME, and I have baldness, I feel that I have a right to speak my mind about this topic. I feel that baldness is more a cosmetic issue, that offers options of hats and wigs, if one feels emotionally inclined to cover up the issue...

Google adds wheelchair-accessible routes to Google Maps :emoji_wheelchair: To read more: https://www.digitaltrends.com/mobile/google-maps-adds-wheelchair-accessible-routes/

I think men look just fine with or sans a full head of hair. So my vote is to give ME the funds.