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Has anyone else seen this? Came up as a sponsored ad on FB. https://psychiatryoxford.qualtrics.com/jfe/form/SV_8owcGAKKo1dL1vD Comments I saw were almost entirely negative, which is encouraging, that people can see through the assumptions etc. Apologies if already posted somewhere, I didn’t...

Initially she said she’d recovered quickly, I haven’t followed further hews. The other doctor’s journey is up and down, very helpful.

Based on the hasty and anonymous leaflet from Oxford, I’d bet on the later!

I spotted the Telegraph article earlier today, the one with our friend SW offering to do research; hmmmm, not entirely confident that it will be helpful research. Sorry but an image popped into my head: ‘Have no fear, Sir Simon is here,’ he says as he rides in to the rescue.... perhaps to the...

NB, this is posted on Opposing MEGA or O-MEGA page, not OMEGA (Oxfordshire ME group for Action). The names are easily confused. Priscilla, OMEGA chair

@Barry commented about his wife’s experience post surgery and his own post glandular fever. I wonder if, in his wife’s case, (unlike his) the medical people may also have pushed for returning to normal activities quickly, ignoring that she had a nasty bug? Times have changed and whereas maybe...

As OMEGA is the local group for Oxford area, we are considering our own response to the pamphlet, in addition to supporting the @PhysiosforME response. I’m really disturbed by the complete anonymity of the group that produced this. Can someone tell me if this is usual or not? We are in touch...

has anyone saved a copy of the leaflet for reference?

I see 35 references, compared with zero in the leaflet! Well done to the team behind it. MEA reports the leaflet has been taken down now.

Thanks Caroline, and everyone else who is calling them out on this. Just when you think it can’t get any worse.... :banghead:

It happens that in a past life I had an allergic reaction to chloroquine, after I took it for a bout of malaria. I was living in a village in PNG where malaria was endemic, so was on weekly prophylaxis, but still came down with malaria. The treatment was yet more chloroquine, which did end the...

Yes, it is going ahead, looking forward to hearing from Caroline — the select few who can come. :) The room is quite large so no need to be that close to others. The Good Gym volunteers will be supporting again; if anyone needs assistance, please ask. And there will be cake! :cake: Please do...

Thanks, @Adam pwme Our committee has now discussed this and a live stream is unlikely, but plan is to record the talk only and post together with slides — which eliminates a lot of the work. But I’ll pass on your offer as putting the two together is ideal but takes time. We won’t record the q&a...

We do pretty well with AGM’s ;) Venue is basic but cheap, so fingers crossed the refreshments are nice, using a new-to-us company to cater. We haven’t ticketed this event, but if ‘huge’ numbers plan to show up, please let us know for planning purposes, thanks! Enquire.omega@gmail.com Oops...

Will check with our guru on these matters. As it doesn’t require editing afterwards that eases the burden. Oh, and need to check @Caroline Struthers is happy about it as well.

Thanks @slysaint for posting, it was on our to-do list. Thanks as well to @Caroline Struthers for her willingness to speak at our AGM. Look forward to this. AGM will last max of 15 months minutes, then Caroline’s talk, plus a Q&A session. And not forgetting the all important break for...

Thanks @Sly Saint for posting this link. The lighting in the room wasn’t great, unfortunately, but something is better than nothing! Grateful to our member who undertook this project in her own time. Priscilla, OMEGA Chair

We had a consultant say something to the effect that all my son needed to do in school was sit there, nothing about actually learning, or socialising! So definitely a ‘bums on seats’ message. He didn’t have a clue how difficult school is for kids with ME as it’s a busy, noisy environment. And...

And this is @dave30th ripping up the LP trial at the end of his talk. :)

Just want to give credit to our lovely healthy volunteers from Good Gym, who’ve already posted about the event! They were a huge help with logistical support at the event...