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Given that dexamphetamine, methylphenidate rarely work in ME/CFS and Modafinil is a useless drug for anything, I do not think this drug will work but maybe worth a go if it is a little different makeup being a possible NDRI.

That is the key point de-conditioning symptoms have nothing to do with ME/CFS at all. The picture is completely different.

Then put the evidence forward. If Alan Gordon said he had Me/cfs then that is a flat out lie. His description of it from a video I saw was of ‘back pain with fatigue’. I mean if that is having what most of us have on this forum call me/cfs then a solution will never be found.

That is patently untrue. Bad science gets shot down on this forum. If you think brain training in the format of Alan Gordon, Howard schubiner has any serious science to it then point me to the studies. They are acting like cult leaders that do great harm at present.

I came across Alan Gordon and saw he had recovered from M.E along with pain. Now it all makes sense.

Hi, maybe if you research Mirtazapine and speak with your Dr. It is commonly prescribed in Australia for Me/cfs sleep problems. It has some serotinergic blocking effects and antihistamine effects. Not sure if is available in Switzerland. It has to be used in low doses as in high doses it becomes...

This is so depressing the whole thing. Rheumatologists in Australia tend to not want to deal with me/cfs but in my experience 50% of them then gaslight you with Central Sentization ‘science’ cured by a mind-fullness course that they sell. It is totally obscene. At least I doubt this sort of...

I have always had much more fatigue-ability with above the shoulder movement than I have with legs and walking. Very odd really. Interesting to see what other people say. Lifting anything remotely heavy is a PEM time bomb.

Dear God. Is that the best the Mayo Clinic can come up with after 4 years of Long COVID. A non scientific study advancing the Central Sensitization theory that is now becoming a cult. Barbra Bruce should just stick to pain catastrophizing.

I briefly spoke to him and from what I remember he felt a little better on cold baths and a few other more specific things but I don’t remember him saying he was cured but it was a long long time ago and I can’t be sure.

This is very interesting nugget that has been uncovered. So many people try this strategy of a different surrounding might positively effect their ME and it rarely does anything. Barry Sheene did this moving to Queensland and it did nothing for his physical state. You have to wonder if people...

This happened to me many years ago and I still got PEM but something had clearly shifted in a positive direction. Unfortunately it was a transitory moment as I relapsed back to where I was before. Nothing had changed in my life to cause the better and then worse health. Pretty frustrating all round.

“A FM/CFS state can be experimentally induced in health individuals with sleep restriction and exercise cessation” Quite unbelievable some of the stuff said in this study. Daniel Clauw seems to have little grasp of the concept of Me/cfs and keeps pushing the central sensitization barrow.

Funny how people know you have ME/CFS but they give you alcohol as a present.

A good discussion. Surely there has to be something in that as i don’t really know of another disorder where alcohol makes you feel shocking. I like the taste with food but about an hour later I feel like I’ve downed a few Periactin tablets. If I have more than a tiny amount I feel poisoned for...

I would probably be the perfect candidate for this study being in the area but I am not sure I trust them to use the data to not green light “rehabilitation programs” for us patients. I’m ok with doing the test and falling over afterwards if I think it would benefit science but after reading...

It was a metabolic study run by Melbourne university. To be in the study you had to have primary mood or anxiety ruled out. That is why Ranjit was involved.

Hi Matth. I was in an unblinded 5 month study of many of those supplements listed. In reasonably high doses and there was no long term benefit. No specialists who I know recommend them. https://www.anzctr.org.au/Trial/Registration/TrialReview.aspx?id=370610

Thanks for the effort. The RACGP commissioned this guy and his daughter to review current evidence base for cbt and graded exercise for cfs in 2013. The review is still on their website but I doubt they will stoop so low to tout The lightening Process...

Interesting that Andrew Lloyds clinic website still promotes “Strong or Level 1 evidence”. You would have to wonder if he is still involved heavily with this update as he uses the same language when interviewed. Clearly evidence of improvement with GET does not exist.