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Looks like Cochrane have given in to the external pressure. I'd be amazed if they don't now roll-over for Larun in November. If that review had gone, PACE would have fallen, and a huge number of important people would be left looking very bad indeed. Not surprising that they pushed back hard...

The people appointing the committee need to judge the applicants to the committee - how else do they decided who to choose? It seems that the people appointing this committee decided that the way ME/CFS patients are treated should be decided upon by those who have a clear self-interest in...

"She found a place to start her recovery at the..." Phrasing like that is a pretty good way of letting us know that they're quacky. A pretty poor piece.

Yeah, and then they'll be outvoted. I'm not saying they should quit yet, but I think it will be very difficult for them to do much good unless we can get an entirely new committee.

Do we know who was involved in selecting the professional members? Whoever it was seems to fully support the culture of bigotry and quackery that has done so much to harm how ME/CFS patients are treated.

Does anyone know who runs this, or who is likely to be involved with trying to stop Cochrane withdrawing the review?

Chris Burton!? Please tell me this is some appalling joke.

This looks absolutely terrible. Who decided that these people we fit to sit on this committee?

The 70% rule seems like a likely counter-productive imposition to me. Also, it's very hard for anything to really control for the sort of biases likely to be induced by claims CBT/GET had been found to be effective, and the promotion of models of illness which encourage the view that...

That sounds bad. It would be appalling if Cochrane caved in after Larun had responded to concerns about her work so evasively, and then when Cochrane's admin felt they had to take action, by helping to promote prejudices about patients in the media. She has shown she is completely unfit to be...

Part of the problem is that people use 'pacing' to mean different things, and there risks being a tendency to have 'experts' define pacing, rather that the patients who prefer a self-learned approach that requires no interference from a therapist. There's stuff like this from around the time...

I don't think that letter is helpful for AFME, particularly as we know what was to come. Giving "full support" to PACE was clearly a bad idea. Interesting that this June 2002 letter talks about APT as successfully defining the elements that would be recognisable to those who have tried the...

I've not looked at Sharpes twitter feed in ages, but he's really not good a discussing things, is he? Too many odd things to be worth posting them all, but thought this one was of a bit of interest: What about the Science Media Centre? eg...

LOL at Sharpe saying 'debate is good'. A few months back he was endorsing the view that debate in the House of Lords was a form of harassment, and claiming that exactly the same thing was now happening with Monaghan's debates.

It's not been withdrawn yet. Still waiting for an official statement from Cochrane about what's going on.

The fact that Larun's replies were so dire is an important part of the problem!

Maybe he'd prepared a hard-hitting talk about patients rejecting evidence, and misguided criticism of PACE that fails to recognise that Cochrane, the most respected brand in Evidence-Based Medicine, has concluded that.... oh dear.

Great to have over forty good signatories when this must have been pulled together really quick. Thanks so much to the signatories, and of course to Tuller too.

This is up in the comments section: Lucibee on October 22, 2018 at 8:51 am There is an error in your report – the quote about “little or no difference” from the main results section is about the comparison of GET vs CBT, and not about GET vs control, which the quote from the conclusions is...

When programmes are presenting the public with a profile of important and influential people, but is not committed to unearthing difficult truths, that's a real problem imo. I realise that I'm not well suited to the BBC!