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In my case specialists did order all the tests that might actually have shown something. The first suggestion it might be ME/CFS came from an endocrinologist who also ordered an MRI to exclude other things. Before that the GP only ordered repeated complete blood counts and gave unwanted...

They might belong to a subculture of medicine that believes in the modern equivalent of shamanism. However a sudden onset of something like ME/CFS is difficult to accept. We see that people often react to it with denial and magical thinking to shrink the problem to something they can endure more...

I remember that one of his earlier comments revealed he had inaccurate views on mitochondrial abnormalities in ME/CFS. Maybe that he misunderstood because he had so little time to take in and make sense of information, or some patient who misunderstood passed along incorrect information.

I am not sure to what degree this is even Whitney communicating. I believe there is a person in the middle that is translating in some way.

The few reactions I've seen were all very negative. e.g.

I have noticed that when my health improves, I start feeling like I was exaggerating my ME/CFS and that it wasn't really as bad. Usually I get worse again within a day or two.

@Jonathan Edwards did you see that Greenhalg suggested on Twitter that we should do a clinical trial of GET for longcovid? She started mass blocking ME/CFS patients afterwards.

Liste to patients. Unless the patients disagree with you. Then they are trolls and should be blocked.

This post and following discussion moved from this thread:Paul Garner on Long Covid and ME/CFS. BMJ articles ________________

@Hutan what a great response. It's got two good arguments, one scientific, one emotional. Both important.

It could be that some long covid patients will benefit from GET but it seems unlikely that it will be the subset with an illness resembling ME/CFS which is what Paul Garner seems to have had (according to himself). If GET is to be tested in LC, the people involved need to have a good...

She also limited comments on that tweet to people she follows. She knows that if she didn't, she would get comments explaining how we already had many RCTs in ME/CFS that showed it doesn't lead to recovery.

I feel some sympathy with Garner despite the horrible ableism in the article. I also did a lot of weird therapies and had the irrational belief I could somehow control the course of the illness with a positive attitude. People tend to believe these things because magical thinking is part of...

Maybe ME/CFS and long covid does make you go mad, in a way. Patients start believing in weird ideas that promise improvement because they can't stand the idea of remaining sick. I wonder if he'll stay healthy.

• Neuropsychological and neurophysiological features of fatigue were studied in post-COVID-19 patients. • Apathy, deficits in executive functions and reduction in global cognition were found. • Abnormal shortening of cortical silent period and lack of MEP depression were demonstrated after a...

By experts you mean specialists, right? How would patients know which specialists they should go to?

Physicians can be good at classifying diseases based on their observable characteristics. From that angle, FND may be a valid diagnosis if only to indicate that it's not any of the other things that can be similar but different in some important way. The hard part is figuring out what's...

I get visibly weak after long sustained mental activity. This seems very unusual to me. It doesn't make any sense that my limbs would lose strength, my gait become slow and insecure when all I did was mental activity. I also don't feel well in these circumstances but nothing too bad.

I'm sure this is all supported by good science and not a confusion of consequences of illness with cause of illness. :rolleyes:

It seems that it's the scientists turn to explain how we got into a situation where ME/CFS has been neglected and nobody involved in pandemic modeling predicted long covid. To me the best answer as usual seems to be BPS influence. They succeeded in trivializing inconvenient problems and these...