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This explanation of the dynamic behind the strained patient-doctor relationship was really on point: "Attempting to induce patients into cognitive behaviour therapy (CBT) to change the way they are alleged to habitually think has not proved a successful strategy, as the revised NICE (2020)...

I love seeing new names in this field! Here's to hoping lots of young, curious minds go into the field with new ideas and fresh perspectives - it's desperately needed.

I like it as well. I think blood flow problems are definitely an important aspect of my own illness. Unsure whether autoantibodies are what's behind it though, but I guess we'll see if this pans out in the future? When it comes to endothelial dysfunction, there's already been three studies that...

From what I gather the different phenotypes refer to different strategies of compensating for the energy strain that they describe. So the underlyting energy strain seems to be more fundemental, whereas the compensatory mechanisms the body chooses to use to try to adapt to it, are more diverse...

A wise decision indeed.

We might have different experiences, but I absolutely feel that there's a sort of irrational bias against medication in some illnesses. Especially among the BPS crowd when it comes to ME/CFS or anything they deem to fit into the MUPS-category. That it's sort of seen as lazy for the patients to...

I'm sure it has. However, to connect this principle with a treatment program like LP you have to have indepth knowledge about what LP actually entails, something I don't think a lot of the decision makers that greenlight these projects actually have. I'm guessing they've heard the sales pitch...

Silje E. Reme, one of the authors, was also one of the professors involved in the infamous LP trial that was declared unethical this spring. She's also published this qualitative study on it in 2013, written in cooperation with our old friend Trudy C. This older study was also on "young people"...

I wonder how many journals have to say no before researchers decide to send it to a journal from "the Romanian Association of Experiential Psychology". I'm guessing A LOT.

I have a family member who's a cancer survivor with fatigue. I've noticed that he has something resembling PEM, although it's much less disabling and it takes a lot more for him to trigger it, than it does for me. I'm not sure if it would qualify as PEM in the sense that we with ME experience...

Poor cancer survivors that are put through this garbage.... Haven't they been through enough?

Found this "research article" (using the term very loosely here) on the Twitter-profile belonging to the "candidate" behind the now infamous LP-study, btw. The article is very similar to her theories on what ME is, so by posting this I guess she's trying to give the impression that her view is...

I hope we're about 4 days away from one of the strongest links being cut with a metaphorical bolt cutter.

I think that is the core problem in this whole field, actually. The patient voice and the lived experience has been systematically marginalized and ignored. That's the only way you can end up with false narratives that are so far removed from the actual experience of living with this illness and...

That's a good point. It's like these researchers genuinely believe that "fatigue" is the only real complaint that people with this illness have, and they just somehow ignore all the rest of the symptoms. The more I think about it, the more I'm stunned that these people have gotten away with...

I don't even know where to start with this one....

Abstract Chronic fatigue complaints are frequently reported in the general population and fatigue ranks among the most commonly reported symptoms in chronic disease. In contrast to its high prevalence and impact on quality of life, relatively little is understood about the etiology of chronic...

If this can be replicated this could be huge. But history has taught me to be careful jumping to conclusions, so waiting for the replication before I get too excited.

"Illness without disease" seems like a bizarre concept in the context of ME/CFS. What we have here is just pathological processes that aren't understood yet. To assert as a fact, that the pathological processes don't exist, just because they're not described yet, is beyond absurd. By this...

I think this was a really good comment/article from Komaroff. He's also done a lot for legitimizing this condition with his JAMA-article a few years back.