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So, raising awareness and educating the public and the politicians is one big step. Could take a while, though. Until then, most part of funding will go to research of other diseases. Can we hijack that? Become the inevitable control group of every research of diseases with related symptoms...

The Institute of Social and Cultural Anthropology (University of Hamburg) shared this video on facebook today. "John Oliver discusses how and why media outlets so often report untrue or incomplete information as science."

sci hub link

p.118 "In this respect it was interesting to note that subjects with CFS, another fatiguing illness, did not manifest this pattern of cytokine co-expression to the same extent as GWI subjects. Indeed only two of the nine CFS controls were assigned to the GWI group by the classification model...

On page 106 it says "9 male CFS subjects", though the criteria for diagnosis are not stated.

Sci-hub link here

@Amw66, as much as that might be true, how many of your friends/collegues etc. have had phases of prolonged stress and did not develop cancer or any other disease? It may be more of a coincidence than a cause. I am very happy with this study, as cancer patients too have to struggle with BPS...

To stay with that example, I'd say that the autoantibodies are not doing the same thing. They are both slowing down the car but by two different pathways. Having one would be bad, having both would be worse... I think that many patients with Lupus erythematodes have more than one autoantibody...

Same here. Maybe we are in a different subgroup?

Full paper also here (sci-hub.tw doesn't work for me anymore)

It seems that on day 2 there is a whole program for patients (pp.13-15). Couldn't find any infos on fees, though. Maybe it's for free?

Heartbreaking, and beautiful at the same time.

Well, maybe I should become part of that trial. Went grocery shopping today, first time this year! It felt so great doing something that normal! And a bit contributing, since lately shopping became another task on my boyfriend's list... So listen, BPS crowd, carrying a shopping bag feels great...

A pdf of the accepted manuscript (not the final version) is here

Thank you @Andy and @Indigophoton! Since linking to sci hub is permitted, here is the link to the study as a pdf Haven't read it myself yet.

@Indigophoton: I do have access. Is it okay to upload it here? Legally, I mean?

Yes, and it seems that synthetis, uptake or metabolism can go awry at any of these steps... I've tried tryptophan, 5-HTP and Melatonin so far. None worked *, although my serum tryptophan is low... * Melatonin seemed to work initially but the effect faded... (edited for clarity)

Sorry, can't find the link at the moment. It was a study about the effect of light therapy. That is interesting. According to your link, melatonin here has been used - "low dose" ('Melatonin did not cause drowsiness, because the doses used were lower than what is usually taken at bedtime.')...

Thank you, @Hip!