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    MAGENTA (Managed Activity Graded Exercise iN Teenagers and pre-Adolescents) - Esther Crawley

    As FITNET is a follow up of a Dutch study ( taken apart by @Docsimsim & Vink ) , I suspect that where the BPS model is alive and well, that you will find paediatric research.
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    MAGENTA (Managed Activity Graded Exercise iN Teenagers and pre-Adolescents) - Esther Crawley

    I don' t know how genuine volunteers are. From the other place there were posts indicating that parents were being " hassled" to join the trial. Phonecalls every 30 mins. With ever present PRS diagnosis should your child slip backwards it' s Hobson's choice. Somehow this Kafkaesque nightmare...
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    UK 21 June 2018 | 3-hour ME debate in Westminster Hall, secured by Carol Monaghan

    Sadly from a parents' forum tonight i learned of an ill child ( has been assessed by a charity at parents' s request and advised as very ill - i am assuming moderate slipping towards severe) who at the fatigue clinic appointment was pronounced to be getting better and so should be commencing...
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    Ron Davis’s big immune study is looking at HLA genes (HLA, WTF?) Here’s the story. [Simon M blog]

    Thanks for making this understandable
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    Steven Lubet: Trial by Error: Professor Sharpe's intemperate remarks for whom is he speaking?

    And if you had to admit there was essentially nothing , you might have to think about seriously funding some research....
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    BBC News: MP Carol Monaghan leads campaign for new ME treatment

    Perhaps channel 4 would be better placed ( through their generally less establishment friendly track record) to actually look at facts? They seem to like engaging in derobing emporers. With the joke that is IAPT about to impact thousands of lives with little public knowledge that isn' t spin...
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    Application of head scraping combined with five-tone therapy in CFS of liver qi stagnation, Meiling et al, 2018

    Gua sha is used in chinese and korean skincare and does seem to improve tone, and skin condition - like Perrin it focuses on lymphatic drainage when used facially. Skin issues are one thing chinese and herbal.medicine do get results - perhaps because dermatology referrals are difficult and...
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    (Not a recommendation) (UK) "Chronic Fatigue Syndrome Conference: Costs, challenges and practice"

    @Action for M.E. this is precisely the kind of approach that renders mild to moderate and moderate to severe in children and requires addressed as a matter of urgency before IAPT undoes the progress being made re GET and CBT Can you respond with how you propose to help with the paradigm shift...
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    (Not a recommendation) (UK) "Chronic Fatigue Syndrome Conference: Costs, challenges and practice"

    This is people positioning for a share of the IAPT pie .
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    Reports from participants in GET and CBT trials

    thread on other place last year https://forums.phoenixrising.me/index.php?threads/pace-10-year-follow-up-feasibility-study.53979/
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    Reports from participants in GET and CBT trials

    I remember a cryptic comment from last year re the FOI requests to the effect that Peter White was handling the same dataset for this study and therefore available to extract info. It may have been prior to his retirement - but if he is not doing it - who is?
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    Reports from participants in GET and CBT trials

    https://www.hra.nhs.uk/planning-and-improving-research/application-summaries/research-summaries/pace-10-year-follow-up-feasibility-study/
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    Reports from participants in GET and CBT trials

    I could be going completely barmy today, so apologies in advance, but is there not a study/ initiative tracing PACE trial participants currently ? I have a faint memory of something mentioned last year.
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    UK 21 June 2018 | 3-hour ME debate in Westminster Hall, secured by Carol Monaghan

    So how does their fire safety work?
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    Waking up in the night and hearing a brain-generated sound

    Tinnitus, and Menier' s disease have been linked to insulin resistance, so low carb could explain why it disappeared for you.
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    Steven Lubet: Trial by Error: Professor Sharpe's intemperate remarks for whom is he speaking?

    Bad things happen when good people do nothing - something to that effect. ...
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    An exploratory study into chronic fatigue syndrome/myalgic encephalomyelitis and fibromyalgia

    i have got a copy of this now .PM if of interest
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    Updates on status of ICD-11 and changes to other classification and terminology systems

    Thank you @Dx Revision Watch for your ongoing vigilence and attention to detail.
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    An exploratory study into chronic fatigue syndrome/myalgic encephalomyelitis and fibromyalgia

    remember this is the land of Dr Pelosi...
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    An exploratory study into chronic fatigue syndrome/myalgic encephalomyelitis and fibromyalgia

    I have just asked my son's girlfriend ( about to graduate from UWS) if she can save a PDF copy - will let you know
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